So thankful for this community.
I am 65 and care for my husband who has Aspergillosis, Emphysema , digestive problems and recently found out he has various heart problems now . Also it is a daily struggle with food as he has disease malnutrition , I have to change foods regularly and visually . He has prescription foods and sees a dietician . It’s the frustrations daily that are difficult for me , as it has affected him mentally . He never has been a communicator but is now worse after a spell in hospital last October with Community Pneumonia from which I did not think he would survive . He is 67 and still can work at home on his computer , as he wanted to continue , it is what keeps him going . I have had a panic alarm installed , we have walkie talkies , so I can at least walk to the shop or post box , or be in the garden .
I find it’s the daily frustrations with his lack of communication that affects me . They mentioned this in hospital . I have always said he has had a form of autism , but no one ever listened . Now going into older years and with the poor health , it is just as it is .
I have fibromyalgia and osteoarthritis .
We do not go out anymore other than locally , recently he has not wanted to even do that as he gets so tired .
So that’s us and my introduction .