Kidney

[JDEAN17]

I had an op to remove my kidney I was in terrible pain after for a long time, and I had Sepsis and fluid on my lungs which had to be taken off,i didn't have that when I went in,my consultant surgeon phoned me personally and told me to go back and have an xray he said there was nothing wrong so how come 1year and 7 months after I am still in pain not comfortable and cannot lay on that side .

[Hidden]

Hello JDEAN17,

I can't say why you are still suffering discomfort, but this doesn't sound right and I think you should start from the beginning again and go back to see a GP (preferably one who knows a little of your past medical history, if you can), and just be a nuisance and complain. Once in a while we seem to get put on a list of people who are 'making a fuss', when there's nothing obvious causing our physical distress, and the only thing to do is to state that the pain is unacceptable and you need further investigations.

Once you insist and it becomes recorded on your records, very few doctors will want to leave things without further investigation, if only for fear of litigation if things go badly wrong for you in the future. But really it's a matter of never ignoring strange and puzzling symptoms. Something else could be going on with your kidney, or close to it, that's underlying this.

[MAS_Nurse]

Hi JDEAN17, I'm very sorry that you are having such a difficult time post-operatively following your nephrectomy. I agree with Callendarsgirl, that I think you need to have a chat with your GP and ask for a referral back to the Urologist, and possibly even a referral to a Pain Clinic. I'm not an expert and this forum is not the place to get professional medical advice, which is why we will encourage you to back to your doctor in the first instance. But after surgery, the pain is acute i.e short-term, and should eventually settle down with the right pain relief. However it is possible for many conditions, not just kidney related ones, to develop chronic pain or neuropathic pain, because of possible nerve damage during surgery, which is sometimes unavoidable. This type of pains needs treating by pain specialists, often neurologists. So maybe a combined specialist approach of both urology and neurology, may help you.

Here are some links to Kidney charities in the UK that may help:

kidneycareuk.org/about-kidn...

kidney.org.uk/helpline

Post-op sepsis is very rare occurring in about 1% of routine operations. Here is a document from the Sepsis Trust:

sepsistrust.org/wp-content/...

I do hope some of this information will be helpful to you.

Take care,

Best wishes

[JDEAN17 in reply to MAS_Nurse]

Hi, I have been to the doctors twice and all they say well the report back from hospital says theres nothing wrong,and I have not had any blood tests since my op ,its as if there not bothered,