Am I invisible .

[francesca54]

Hi Im 62 and have muscular dystrophy, I don,t know many people and never really know who i can turn to even for a chat and a coffee. I have tried to talk to people but they all have their own lives and families and when I have invited them for coffee or a chat they say ok but never take me up on my offer which makes me feel as if I am invisible. Has this ever happened to anyone else ?.

[CDreamer]

Yes, in a word.

I have recently become less active and whilst I used to have a wide social circle, I rarely see anyone as whilst my friends are all out and about I can't do what I once did so they get on with their own lives and I don't even get a phone call so I keep in contact thro FB and 'talk' to other fellow sufferer's on forums like this.

I do things as and when I can and keep a positive outlook as I have seen too many people's eyes glaze over if I try to talk about my problems. Be interested in others and what they are doing and they will talk for ever. Such is life.......

Where in the world are you? I live in Devon, UK.

[francesca54 in reply to CDreamer]

I live in Cambridge

[CDreamer in reply to francesca54]

Oh, lovely University town. Is there a U3A in the town? Oh there is a very active one, I just looked. I have found companionship and friendships through shared interests and our town also has multiple interest groups, some meet in each other's houses whilst others pay a small fee and hire a hall. u3ac.org.uk/ Why not check it out?

How mobile are you? Our U3A even has group to share transport to have days out for those who are not that mobile themselves.

Then there is something like lunch clubs, there are a few here or look on Streetlife for local 'chats', news and interest group meetings.

I am not always able to go if I have a 'bad' day but mostly people are very caring and supportive. And we ignore the rest.......

xx

[jaykay777]

I'm not quite invisible, but people often ignore me because I'm a woman who is old, tiny, and have childlike features. Once I open my mouth, they see past that. If you can get out and about, try joining a club or group even if it is a support group for people with MD. Through support groups for my various illnesses I have met some women whose company I enjoy.

[Hidden]

I would suggest you go onto Fibromyalgia forum as there are people on there with all types of skeletal conditions and the warm feedback you will receive is lovely - you can rant and rave - share how you are feeling and they will understand. Give it a try and hope you gain some comfort from them - some even become friends - I have just arranged to meet someone in the near future that I have got friendly with and who lives near me. Wishing you luck and take care 😘😘🤗🤗