BWS Support

Beckwith widermann syndrome child

Hello and good morning friend,my name is ayu..i'm from malaysia..actually i just want to share about all my child have genetic disorder and it call beckwith widermann syndrome..i have experience 4 child with this genetic disorder..my first child pass away 17 days after deliver in 2012 because of large examphalous with multiple organ failure...my second child have small omphalocele but the doctor reduct the omphalocele 3 days after deliver now she's fine and have a better live...i miss miss miscarriage for the third child also have beckwith widermann syndrome with omphalocele...and the fourth one i have deliver 4/7/2016 also same genetic disease with large examphalous..but i never give up when the genetic specialist said my choromose no 11 is problem and my percentage 99-100% to get same baby for the next pregnancy...