My T has always been loud , but recently tried the sound therapy small speaker and my T is now totally unbearable at night - unbelievably loud, hissing , high pitch,all over head - its torture - sometimes i feel i cant go on. Just seems to be getting worse and worse and more debilitating. Anyone else out there suffering extreme debilitating T , which is only about 5% of T sufferers.
thanks for all replies
I recently had covid and mine got much much louder day and night and felt unbearable. I was feeling regally depressed so I can relate. I also get dizziness with mine and the louder it is it seems the dizzier I am which is horrible. It’s gone down a bit and feels less overwhelming. I’ve been swimming again which helps me feel calmer. I have a fan and rain/storm sound on at night, which is weirdly comforting. Walking in windy woods helps me a lot during the day. And knowing other parts of my body are strong and healthy helps at times. I ado have 3 young kids so they are a wonderful distraction. Sending fortitude. You can do this.
thnx Arty - did yr T settle after u recovered from covid or did it stay louder
it has stayed louder so far. I’m finding it tough to adapt but praying it goes down a bit. Hope you’re ok.
thnx Arty - i am looking into diet and T at moment and how i can make changes - when i have complied the info i have learnt i shall post it to this forum - it could be part of the jigsaw on managing T
I find that exercise (especially swimming) vitamins, healthy living, good diet, lots of water, less stress make a big deference but it’s just keeping it up! Good luck and keep me posted.
many thnx AP
really sorry to hear this, I have been exactly where you are right now, do you wear hearing aids/ maskers??, this really helped me on my recovery, I know not for everyone, they worked for me, I sleep with them in as instructed by audiologist , please keep fighting the fight it’s not easy but with help and support you will get there.
thnx Wt99 - i found the T unbearable when i took the hearing aids out so could not continue with them
The short answer to your question is "yes". My T began 22 years ago. For the first 15 of those it was a damned nuisance, but day on / day off (like the proverbial clockwork). If I woke in the night, when it was present I could turn over and go back to sleep.
Almost 6 years ago that changed, it became much louder and gradually, almost continuous (I still get the occasional break, usually when my attention is wholly devoted to some problem). Nights are by far the worst, and exacerbated in my case by the fact that my T never has been maskable by external sound. Ear buds work with certain masking frequencies, but that is not feasible in the night. I tried the BTA's SleepPhones, but even they do not work, because the sound is not in my ear canal. My T is mainly focussed in my left ear (where I have hearing loss and an aid), but it is quite capable of filling my head, switching sides, and changing in character and frequency on a daily basis.
I am responding to your post, and in this degree of detail, because you asked if others had T very similar to your own. I don't usually reply in, as it were, "misery and no solutions" mode, because that does not help anyone, and we are here to help. I can end only by emphasising the point you made, that that catastrophic, unmaskable, debilitating T is rare - 5% or less, and nobody reading this should lose heart or think that their T will inevitably move in that direction - in the vast majority of cases, it won't.
Hello! I had very loud T for years, with extremely crazy spikes, until I began to take all of this:
1.- Passinflower plant at night before sleep, but you don,t have to take medicine for sleep!
2.- Magnesium L-Threonate (only this Magnesium works well with T.) five hours before sleep.
3.- GABA with Gingko Biloba before breakfast and three green tea Matcha per day.
4.- Control your blood pressure and detects if you snore.
I'm sure in a one or two month you’ll be much better!!
Best wishes!!!
hello i haven’t been on here for a long time …but like you mine is now unbearable loud hissing and oscillating day and night ..may have been covid or vaccines .
Hello, yes I have the really severe type that make you feel like exiting this world.
It’s a struggle to get through each day and so far each day I have struggled through.
It’s monstrous and a waking nightmare so I’m definitely with you. Mine was caused by a virus that also took my sense of taste and smell at the same time. That gets me down, coffee, fresh bread and cut grass are things I find hard not being able to taste or smell.
However, the loss of those are nothing compared to the 24x7x365 scream of a high pitched, incredibly loud, storm of a head full of ‘the worst’ thing that feels possible. The taste and smell which would normally be so bad, drops away to nothing compared to the scream of a jet engine.
I know this sound horrible and I need to be positive but I’m trying to explain that somehow each day I get through the day.
Sure I’m physically tired every day and think I wished I was better but have to realise how great we all are living through this. As always stress and tiredness is the enemy and also a constant companion on this journey.
Do things for you and be kind to yourself. It’s really rubbish that this has happened to you and I feel for you. I’ve explained this so you know others have this and you are not alone.
Take care and reach out.
Best and take care Graham
Yes i am like you im also in the 5% and im your age 61 my T ranges from loud to very very loud and sometimes life is unbearable for me i have 4 different types of T drug related T due to my cancer drugs head injury T pulsating T and fluttering T i have all different types of sounds but its not all bad i have learned to live with it and when you do that life gets better iv forgotten what peace and quiet is so this is now normal for me i go for long walks and i can lose my self and a lot of the time i am ok the worse times are when my spikes go on a long time but they do calm down eventually apart from caffeine im not sure what starts them off i just thing the brain decides what to do but your T will calm down again i know it never seems that way but it will so hang in there my friend one thing that does work for me at night is listening to rain falling hitting a window iv had that same sound every night for over a year now it sends me to sleep and i never get fed up off it .
hello surviveT. Whilst I don’t suffer like you, I can say that I can easily hear T above the noise of my car on the M25 going at sixty - so it’s loud. But why doesn’t it bother me much?
Mostly I just don’t hear it. It’s loud at this moment because I’m writing about it. But I’m habituated, partly because I thought it was a normal process of growing up (sister, mother, father had it, as did first boyfriend). But mostly because I just take no notice. Yes there’s a spike, but I know it’s going to go away again so I just ignore it. Yes, sleep sometimes is hard - but by the time you get to your mid-sixties and more - we’ll good sleep has more or less gone anyway.
This is Habituation - how? Here’s an analogy. This morning for the first time since last spring I had to put on a heavy raincoat with a hood. It was uncomfortable because it was heavy, and the hood is awkward. But by the time I’d got a couple of hundred yards up the road I’d forgotten about it, and when I put it on again it didn’t feel heavy. That’s habituation.
Or, the people I pass by when walking. If there are just a few people we say ‘good morning’ when we pass; if it’s a busy supermarket or street one doesn’t say anything - you just don’t notice them.
In time you too, survive, will habituate.
Hi surviveT I'm sorry you're having a tough time. I don't know if I'm in the 5% but I do know that my T is loud - especially in my partially deaf ear . I've been up & down in the last two years . Down at the moment. T is spiking badly. Stay as calm as you can. Do things that help you relax. Try to avoid any upset if possible . We're all here for you. You can survive this latest spike.
dropping off to sleep is taking many hours at the moment - can u drop off to sleep ok
I'm sorry. It's a challenge when it interferes with sleep. I had a few problems over the summer - waking up very early. I'm back in a rhythm now. I hope you will be soon too.
thnx EM - it seems i have prob with some sound therapy methods
Yes mine has spiked to a very loud hissing that i can hear above everything including tv.Nights are worse but unbelievably i had a good night last night with only one wake.Usually its 2 or 3 times and good old T reminds me its there grrr
thnx EM - i have the OTO app so i shall look into the sounds
sorry you are going through such a bad time. Had tinnitus 5 years but chronic the last 8 months so I feel your pain. Have you tried the sleep headbands. They’re Bluetooth so no wires getting in the way. They’re the only thing that helped me. There’s also a YouTube channel called m.youtube.com/c/dalesnale. This has loads of different frequencies and sounds to help people sleep/cope. Good luck and even though times are tough keep going. All the best.
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