TRT therapy and habituation

[Curlew]

I have just been thinking about tinnitus and the overall help or support which is in the main to enable 'habituation ' through tinnitus retraining therapy and, or mindfulness.

Although I understand the concept of habituation, at times I have felt it is something I am managing to achieve, I really don't fully understand how tinnitus retraining therapy or mindfulness work, as in what exactly do we do and how do we use these therapies in order to achieve 'habituation '

The thought then occurred to me that surely this site and forum , being the British Tinnitus Association, must be a good place to give people struggling to deal with this condition some help in this respect.

As proper help and therapy is so variable within the NHS why is it not possible for us to achieve some constructive help as in TRT or mindfulness for tinnitus through this website. This might go a little way towards achieving that goal of 'a world if not without tinnitus at least a world with an easing of tinnitus.

Surely this is one of the best places to get that kind of help online.

Just a thought that occurred to me.

[Hidden]

Hi Curlew not wishing to knock TRT or mindfulness I have tried both and I found it doesn’t work for everyone with mindfulness you really have to put in the time and effort into to it and it can take a while before you really master mindfulness good luck .

[Curlew]

Oh dear we'll just have to keep living in hope of that ever elusive 'cure' then 😱😂

[Hidden in reply to Curlew]

Yes have you tried meditation which again can be relaxing.

[1Dar in reply to Hidden]

Hi crocket bear... I’ve tried meditation many times....have you got any tips on how to concentrate with constant high ringing going through your ears? 😊😊

[Curlew]

Yes, I've thought about trying mindfulness, or meditation, have you ever tried any of these things CB? I'm quite a relaxed person by nature really but at the moment this T is enough to try a saint as they say 😂

[Hidden in reply to Curlew]

Hi I have tried mindfulness it's quite difficult to get into as you have to stay with it not everyone will find it helpful meditation. Is easier the guided meditation is easy as it will guide you with simple you just listen and follow the instructions there are loads on YouTube you can choose from or on your smartphone apps good luck.

CB

[Hidden]

HI Curlew,

In the majority of cases TRT helps a person to habituate to tinnitus. However, one must realise that this is a specialist treatment that has to administered correctly following a strict protocol if maximum results are to be achieved. I have had TRT twice (The full treatment) in my 22 years experience with tinnitus. Many people that say they have had TRT treatment I find this is not the case. They have had elements of the treatment which is not the same thing. This treatment lasts up to two years and as I've said, a strict protocol must be followed if one is to obtain maximum benefits. This treatment is expensive if one is to pay privately. It is only available at some NHS hospitals who may have adapted the treatment to their specific requirements (elements of it). Please read the post below that I wrote at another tinnitus forum and explains TRT in full.

All the best

Michael

TRT, As I See It.

I think some people misunderstand TRT and the way it can help tinnitus. Whilst a person is entitled to an opinion, if they haven’t been on the programme and only read reports on it, I don’t believe they are getting the full picture. A number of people have asked me about its effectiveness and when should it be administered. I covered this in my post: What is TRT and when should it be started:

TRT has quite a following and has caused much debate in this forum and elsewhere on the Internet. Unfortunately, a lot of these comments haven’t been favourable, although those that have had the treatment or elements of it have said they found it helpful. This treatment is expensive and I will be candid and say, only those that can afford it are able to try it.

Where I live the treatment is free but it is only available at selected hospitals. Even then, some don’t follow the TRT protocol and adapt the treatment to their requirements but good results have still been possible. In some parts of the UK it’s just not available nor is CBT. Therefore, anyone wanting TRT will have to pay privately at clinic. Other forum members have told me the treatment is free in their country and like the UK, it has been adapted to include some elements of the therapy.

This may be wearing one or two white noise generators and not always having tinnitus counselling with a Hearing Therapist, so a person may be left to just get along with it.

I have learned in some countries medical insurance won’t touch TRT, so a person will have to pay for it out of their own pocket, which I think this is unfortunate.

So what is TRT and if one is able to pay for it should they, taking into account some of the negative comments that it has received? Having had TRT twice over 20 years following the TRT protocol, I will try to shed some more light on this treatment and hopefully give the individual a little more clarity to make up their own mind on whether the financial outlay is worth it, but more importantly; is it effective as a treatment for someone that has tinnitus and hyperacusis and enable them to have a better quality of life?

I first want to say the following is based on my own opinion and therefore is not professional medical advice. The onset of tinnitus can be quite an emotional roller coaster for a lot of people, and I believe a person needs time for this to settle. Many people habituate within the first six months to one year of the onset of tinnitus without any treatment. If a person just has tinnitus without any additional symptoms, such as dizziness, deafness or balance problems. I think a period of at least six months should elapse before starting a long-term treatment such as TRT. Anyone paying privately needs to know they are getting the proper treatment. Any clinic not giving you this service then I advise you to go elsewhere because it is not TRT.

You should be given two white noise generators to wear and also having regular counselling sessions with a Hearing Therapist or Audiologist. More is explained in the above link.

TRT is not a complete cure so anyone seeking this might be disappointed. However, the sound therapy, which involves wearing white noise generators, I believe can cure hyperacusis as in my case. It should be noted, whilst this treatment may not cure tinnitus, many people find its perception reduces to such a low level they can comfortably live with it. Habituate. In some instances a person might be unaware of their tinnitus for long periods. Each person will respond to it differently.

If you have ever lost someone that is close to you, such as a parent, partner or even a pet then you will know what it is to grieve. Most people will go through this process at some point in their life. It is not often talked about but we all know it’s something that’s inevitable and will come to us sooner or later perhaps even more than once in our lifetime.

It requires a period of time for a person to accept that their life has changed, and time is needed to adjust so they will eventually be able to move on.

Why am I saying this some of you might be wondering? A forum member recently asked what does TRT involve? I was explaining to him, the counselling part of the therapy and the relationship between patient and Hearing Therapist. At first the therapist discusses with the patient how the tinnitus makes them feel and how it has impacted on their life. Often people say they have lost interest in the things they once liked doing, which is perfectly understandable. The main goal is to gradually help them to look at life differently and with a more positive outlook. Over time the negative thinking that is often associated with tinnitus and hyperacusis is gradually dispelled and demystified.

The Hearing Therapist does this in a controlled and precise manner so that the patient feels relaxed and not pressured.

The forum member then said it sounds like a form of grief counselling. After we had spoken I thought about it and have to say I believe it to be a good description, because that’s what the therapy part of TRT is akin to.

The amount of times people have told me over the phone or read posts in this forum: “If I could only get my life back”. “My life used to be perfect”. “I keep looking at peoples ears and wondering what my life used to be like”. “If I could only hear silence again”. And so on.

When someone gets loud intrusive tinnitus with or without hyperacusis, in an instant their world has been turned upside down. Some go through periods of stress, anxiety even depression and yearn for the way life was before the onset. They need time to adjust and to accept this new anomaly in their life. Some have an easier time than others at habituating, so may not need the help of a tinnitus counselling. For some that find the tinnitus and hyperacusis severely intrusive TRT and CBT can prove to be helpful.

It all depends on the individual, their emotional makeup and the severity of the condition because we are all different. It is for this reason; the treatment can take up to 2 years for a person to adjust to a different way of life and often with a positive outcome.

I was fortunate to have TRT twice and found it to be helpful on both occasions. I only wish that it were more readily available to others.

Michael

[Curlew]

Thankyou M, that is informative and reassuring.

[drumcraw]

hi curlew. yes that's a great thought but I do think that until theres some kind of breakthrough were all on our own,its disappointing that the B.T.A. don't have anyone on the helpline that's medically qualified to answer the mpountain of questions that people want answered when the phone or ask online but yes! it IS a great though stay strong craw.