Bronchiectasis in children and teenagers

[SunshinePlease]

Hello everyone. I hope those of you reading this with bronchiectasis are feeling well right now.

I have a 14 year old son with bronchiectasis and I wondered if anyone here has experience with children with the condition. My son got it after contracting a superbug in hospital seven years ago. He takes azithromycin three days a week and does airway clearance daily. However, I am worried that as he gets older it will get increasingly difficult for him to comply with the airway clearance, and I will have less control over him! He currently accepts it's part of his life, but his clearance technique isn't always great. I try to encourage him to get as much exercise as possible, but you know - he's 14!

Any thoughts at all that could help our situation would be gratefully received.

[Lybra]

I am on the opposite age spectrum of your daughter, but I was able to get my Dr. To look again for help , for this problem. I was prescribed one a day Acepiro tablets, this is dissolved in a glass of water, has a good flavour, and more to the point it does work. My breathing improved almost from the first one I took ,and my every day tiredness also improved.

Of course medication doesn’t, always work the same for everyone, but ask you doctor, it,,s worth a try , good luck.

[SunshinePlease in reply to Lybra]

Thank you for your thoughts!

[Mooka]

Try your post on the lung conditions thread. There’s people on there who have had Bronchiectasis themselves from a very young age and so have been through what your son will encounter. Good luck it’s hard not to worry more when it’s our kids.

[SunshinePlease in reply to Mooka]

Thank you! I will do.