Welcome!: Welcome to your new liver... - British Liver Trust

British Liver Trust

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Welcome!

17 Replies

Welcome to your new liver community, set up by the British Liver Trust. This is the first time we have embraced something like this and we hope you find it helpful and of use.

As more and more people start joining our liver community, or liverland as I like to call it, the more interactive and helpful this can be.

So, take a look round, feel free to blog, share your experiences and vote.

Thanks!

Sarah

17 Replies
Jtxx profile image
Jtxx

I am so glad you have joined the HealthUnblocked community and I look forward to talking to people with the same condition as myself.

Disabilityhearing profile image
Disabilityhearing in reply toJtxx

I am really excited about joining. Ther is so much we can all learn from each other and we know we are not alone

Nix105 profile image
Nix105

It's great to see a forum set up for liver related illnesses. There is so little information available from real people who have liver disease and now we have a place to share experiences.

Since I was diagnosed earlier this year I have felt very isolated - there's an enormous amount of info for cancer and such like but very little on living with liver disease.

I can't wait to see how this site develops.

Jtxx profile image
Jtxx in reply toNix105

What liver disease do you have? I have PBC/AIH overlap syndrome which is 2 autoimmune liver conditions. x

Disabilityhearing profile image
Disabilityhearing in reply toJtxx

Advanced stage 4 cirrhosis of the liver

Nix105 profile image
Nix105

Hi, I have compensated cirrhosis and portal vein hypertension. I had a severe bout of hepatitis @ 4 years ago where they never found a cause, however the Drs thought I'd recovered, but last year they discovered the PVT on an MRI. At the moment I'm still undergoing lots of tests but there so little information on living with these conditions.

How long have you been living with your condition?

Jtxx profile image
Jtxx in reply toNix105

Sypmtoms of flushes, restless legs, disturbed sleep, weight gain. First consulted doctor May 2011. Bloods showed elevated LFT's and the rest is history....... x Knew a bit about PBC as my late mother had it... x

Disabilityhearing profile image
Disabilityhearing in reply toNix105

I was diagnosed in 2010 and the only real symptoms I've had is the horrible itching and the chronic fatigue. My ankle swell every now and then but I get really depressed

AnAn profile image
AnAn

Hi just wanted to say really glad to have something like this.

I have recently been diagnosed with AIH and AIHA and am awaiting further results on other tests. I am slowly discovering what this may mean for me now and in the future. Really great to have the opportunity to talk to others with similar experiences and understanding and for us to be able to offer support for each other with a personal understanding.

So thanks

Ax

Coastman profile image
Coastman

This could be a good site. My liver condition is as yet undiagnosed. When it is, I'd like to find advice on diet, lifestyle, recovery et al - as well as share how easy tests and biopsy have been. It also shows what medics are up against! So many different conditions with overlapping symptoms!

Disabilityhearing profile image
Disabilityhearing in reply toCoastman

I know what you mean. We can all learn from each other

Coastman profile image
Coastman

I get very itchy still, even though I'm using two sachets of the stuff you mix with water. Any ideas of how to further reduce this please?

Disabilityhearing profile image
Disabilityhearing in reply toCoastman

I wish I did know., when mine comes on it last for weeks and all I do is cry. It is horrible. I've tried ice to freeze it and also hot water to stop it. It just runs it's coarse and when it is gone I pray it don't come back

ancientadolescent profile image
ancientadolescent

This just what I was looking for, a forum to give and receive information regarding liver transplantation.

Many thanks,

Mike.

Disabilityhearing profile image
Disabilityhearing in reply toancientadolescent

I just joined tonight and I haven't been to sleep yet. Glad to have you

Raksha1964 profile image
Raksha1964

So glad there this new forum I am 8 wks post liver transplant, didn't even know was ill, collapsed rushed in & with in 24 hrs my family told I had 48 hrs & was put on super urgent. Luckily one came up but the way all happened am really struggling come to terms with it all & the steroid induced (diabetics) they think, has left me with. I try tell family etc how feeling but doesn't help, anyone else gone through similar?

lighthouse123 profile image
lighthouse123

Hi have just found this board.. its fantastic forr support and info. Im finding the net mind boggling with one site telling me to do one thing and another telling me not to do it.

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