Consultant Appointment

[Jo1305]

Hi my husband was diagnosed with decompensated cirrhosis at the end of 2021. His last consultant appointment was the beginning of 2022. He finally has a consultant appointment this week. I'm compiling a list of questions to ask at his appointment as I feel as though we are in the dark with regards to his diagnosis. He's had 6 monthly ultrasounds and endoscopies, he attends the liver clinic for bloods every 8 weeks but we've never really had any results explained to us. We would really like to know his MELD (UKELD) score or his child Pugh score and if a transplant is on the cards. What other questions should we be asking the consultant as I really want to be fully informed? Everything I know about his condition I've had to google and don't want to waste an opportunity to get proper answers from the consultant? Thank you Jo

[Dinah48]

we are in a similar postition with my husband, his next consultant meeting is coming up. He had varices - so decompensated - and, after some infections and more varices, finally seems compensated, fingers crossed. After the first consultation we were sent a printed sheet with meld and childs Pugh. There is also a bone density scan to ask for. My husband does not get regular bloods so will be asking for that. Will be following your post as I would like to know the questions too. Definitely worth prepping to get the most out of these sessions. Good luck.

[Oldbits]

Hi, on the liver trust website under diagnosis and care there is a section on questions to ask your doctor along with a lot more information that might help. The liver trust website tends to be more up to date than google aswell. Good luck with appointment.

[BritishLiverTrust1 Partner British Liver Trust in reply to Oldbits]

Thanks Oldbits, here's the link:

britishlivertrust.org.uk/in...

[lippy44]

Hi jo, you dont live in Cornwall then. Ive been waiting since November 2020, ive never seen a consultant, just a 2 minute call at first. im the same havent been told anything, just had to google stuff myself. They think just having a scan and bloods makes everything ok Go and bang there doors down jo, you need to. Hope you get answers x lots of love xxx