Hi all, not really a question but I just wondered if anyone else is in a similar paddlesds canoe, I was yDiagnosed with Nash for about 3years, also diabetic and acute back pain.
Had the assessment last year, was Co sidered in need of a transplant (UKMELD score over 50) but due to high BMI not suitable for the listing at the moment. Fully decompensated. (basically a brick for a liver!) diabetes had caused problems so put on a Basal Bolus insulin regime. Weight shoots up because of insulin, start walking a new dog three times a day, repaired bycycle and started cycling regularly. Bingo, weight starts to come down. Warmer weather arrives, Ascites gets worse, odema in the legs shoots up, weight remains the same. Try to reduce quantities in diet and up the exercise, Ascites gets worse odema make my feet look like hobbit, its like walking in wellies filled with water!
End result, weight stays the same. So no chance of getting on the list to resolve the very problems that make it necessary!!!
on top of that the removal of codeine and directly put on Nefopam caused a full on Cold Turkey withdrawal that lasted all over Christmas until the new year. 😔.
Also Hospital liver department went completely " Radio silent". Local hospital arranged an ultrasound, no results but nurse doing the scan was quite surprised that I hadn't had a drain done. Showed a 7.5cm block of black nothingness above my liver. Oh, and the Doctor also told me to stop driving which has pretty much ended my own company as I mostly drive to hospitals all over the UK to fix machines in labs.
Sorry its so long, just needed to say it all without worrying my wife.
just stuck in a bottomless pit of fed-up Ness.