QEHB: So I posted yesterday that my... - British Liver Trust

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QEHB

Lippy42 profile image
13 Replies

So I posted yesterday that my hubby has got his first appointment at queen elizabeth birmingham a couple of replies have got me really nervous as their experience wasnt /isnt good has anyone had a good experience to put our minds at rest 🙄

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Lippy42 profile image
Lippy42
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13 Replies
Huggy7614 profile image
Huggy7614

Hi Lippy,

From my very first appointment at QE un feb 2019, my transplant in May 2019, and continued visits, especially immediately post transplant, I can say, hand on heart, I could not have wished for a better service.

I was informed of the process all the way through, and kept very well informed of all issues as they happen.

I completely get how nervous and apprehensive you both are, I can remember feeling very nervous going for my assessment days, but they were incredibly informative.

Please pm me if you’d like further details, or even a chat to you both about the process. I’m a big fan of the QE!!

Good luck, Andy.

Lippy42 profile image
Lippy42 in reply to Huggy7614

Thanks Andy hope you keeping well yes our heads are a mess at present but these positive messages are really helping and are what I needed thankyou and take care x

Chasdog profile image
Chasdog

Hi, I had a transplant at QE in Sept 2020 and I can honestly say that the care I have received, from assessment to present day, has been outstanding. I can supply you with further details if you pm me. Wishing you all the best and I can assure you that you are in the best hands possible. Take care.

Lippy42 profile image
Lippy42 in reply to Chasdog

Thankyou so much and I hope your doing well our heads are in a spin at the moment I've decided to take it day by day if I look to far ahead I get in a panic which isnt good for my hubby Take care x

Kl61 profile image
Kl61

My partner is going for day 1 of assessment on 6th June.He has had 2 assessments previously and both times it was a good experience, lots of information and very organised. He has never been admitted, the second part is usually 2 days and can be quite tiring, we have to travel so usually stay overnight in a hotel nearby. His previous assessments were before covid so I don’t know if things have changed.

Lippy42 profile image
Lippy42 in reply to Kl61

Thankyou so much for reply hope everything goes well take care x

Roy1955 profile image
Roy1955

I can't see any posts that could concern you.Has the posts your referring to been removed?

Do you mean about the journey there?

BritishLiverTrust1 profile image
BritishLiverTrust1PartnerBritish Liver Trust

In addition to the replies you've already received, you may find it helpful to read more about what to expect on our website, including some frequently asked questions: britishlivertrust.org.uk/in...

It may also be helpful to have a chat with one of the nurses on our helpline. You can ring them on 0800 652 7330 between 10am and 3pm Monday to Friday (excluding bank holidays).

Best wishes,

British Liver Trust

Alibaba80 profile image
Alibaba80

I was one of the people that have not received good care from the QE. I have been an inpatient many times and I live on the doorstep. I am a young female and unfortunately I have had to fight to get help...both for my cancer and my liver issue. It may all depend on the consultant that you reveive and obviously it is subjective. I'm sure if people receive the care and medical intervention they want then they will be happy with the care they receive. But unfortunately, that is not the case for me. So I am not a fan of the Queen Elizabeth Hospital.

Em66 profile image
Em66

My son is under the care of QEHB, he has cirrhosis and was diagnosed just over 2 years ago. The care he has received there has been second to none by everyone in every department that he has seen in. It's a 2 and a half hour drive away and we were told that some of the care could be done by our local hospital but would much rather travel and receive the excellent care that he receives in Birmingham.

Lippy42 profile image
Lippy42 in reply to Em66

Fantastic I'm so happy with the good reviews I'm receiving about QE .I hope your son is doing well take care and thank you 🥰

TBSW profile image
TBSW

I can only reiterate what others have said. I received the best care from QEH, from my first initial visit to the post transplant care. When you are under the pre-transplant team, you will be reassured that you see the same people every time, they get to know you and your accompanying partner and never rush you if you have questions, no matter how trivial. Good luck and I hope your husband gets the treatment he needs x

Lippy42 profile image
Lippy42

Just got home and yes we were really happy with first appointment and how it went dr armstrong was fantastic and we now have hubby's first full day appointment booked in in 3 weeks time for tests and another step nearer to transplant .yes we were told today hubby does need a new liver so plan is to build his strength he has a lot of muscle waste get him stronger to withstand the operation. Thankyou for your positive reply hope all is well take care 🥰

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