Liver desease: Hi everyone!I'm posting... - British Liver Trust

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Liver desease

Totulsanatos profile image
9 Replies

Hi everyone!I'm posting here for the first time and i looking for any help 'cause i don't know what to do..In january i was diagnosis with liver fibrosis stage between 2and 3..As we know 4 is chirrosis and i don't want to get there..that's why i need to know what investigation i have to do because from hospital i have an appointment only on 16 may by phone to explain them the situation and then they will decide what we have to do next..i don't want to wait that long cause i have no treatment at all..You think is good ideea to have a CT scan at this stage of disease??thank you in advance for any answers!

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Totulsanatos
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9 Replies

Hi,

You are welcome to call our nurse led helpline for a supportive chat on 0800 652 7330 Mon to Fri 10am to 3pm.

oxaram profile image
oxaram

Call the helpline for a supportive chat by all means. My standard advice would be to abstain from all alcohol wef immediately, stop smoking, avoid salt and try to eat healthily. Exercise if you can. Just to put you in the picture, the standard follow up for compensated cirrhosis is six monthly ultrasounds and a gastroscopy every two years. If the doctors can find out why you have fibroses, then removing the cause will prevent your liver from getting worse and might even reverse the damage. Good luck.

Totulsanatos profile image
Totulsanatos in reply to oxaram

I never drink alcohol,in never smoke..but thank you for your answer.

Nalabanana profile image
Nalabanana

Hi welcome ,ive only been on here since the begining of the year, as same as you have liver problems ,i to had a fibroscan in january it was a follow up scan as i had one a year before which my score was f2 then this year im f3 which is a jump from my last scan as im not a drinker plus im an active person this is worrying ,i have an appointment in 2 weeks to find out whats next they did say in my letter they may do a biospy so il wait and see ,i have lost weight in the last 15 months which is a good thing ,its hard but try not to worry and wait for your appointment ive had to wait 3 months for this one i look at it if the doctors are really worried then they would have seen me earlier so i try not to think about it ,this forum is great and people are lovely if you have any worries just give the trust a ring as they are here for you ,good luck with your appointment as soon as i have any news on mine il update everyone 😊

Totulsanatos profile image
Totulsanatos in reply to Nalabanana

Sorry for you!..My score is bethween F2 an F3..thank you so much for your answer.

Corin1950 profile image
Corin1950

Have you had any blood tests for Autoimmune Hepatitis, Hepatitis B and C and Alfa Antitrypsin along with your normal blood tests? I was given those along with a Fibroscan which gave 2 scores. One for fibrosis and one for the amount of fat in my liver. Given that you are not a drinker and your age you need investigation to find out what’s causing the fibrosis and like you say prevent it developing into cirrhosis. From what I have learnt it seems to be done by eliminating illnesses til a diagnosis is reached. In the meantime while you are waiting for tests eat very healthily and try to lose weight if you are overweight , exercise, don’t drink alcohol and cut out sugar and salt as much as you can. My diagnosis was high fatty liver with little fibrosis and this is the advice I was given by a top consultant. He wasn’t too concerned because of my age (71) but in your case at 30 you need some answers. Wishing you all the best and let us know how you get onX

Positive001 profile image
Positive001

Hi Tot.....Are you a healthy weight and avoiding fats and sugars? Diet and exercise can play a huge part in maintaining a healthy liver.

Totulsanatos profile image
Totulsanatos in reply to Positive001

Before Christmas i had 48 kg and now i have 43kg only...i try to eat healthy.,i don't eat to fat or tu much sugar with.

Positive001 profile image
Positive001

Good news. Good luck with getting some much needed answers for your condition.Best wishes

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