Help?: After a CT scan revealed... - British Liver Trust

British Liver Trust

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Help?

36 Replies

After a CT scan revealed Cirrhosis with no symptoms incidentally 5 months ago I am finally getting an NHS appointment

I had a private appointment 2 months ago was told the CT findings were incidental only for a Fibroscan score 19.7 conclusive of Scarring of the Liver

The Consultant assured me my Liver is working normally and Blood tests are normal and the situation is reversible and will be monitored every 6 months with scan and blood tests

I have not touched a drink for 5months

My Question is what to expect at the Hospital appointment and what should I be asking

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36 Replies
CHRISR999 profile image
CHRISR999

Hi I'm just letting you know you can turn in around. I had a scarred liver my score was nearly 13kpa. Two years later its 4.6kpa. Everything healthy from now on. No toxins at all. No smoking or drinking etc. Love your liver now. That's how I did it. Hope this helps

in reply toCHRISR999

Thank you Chris I don't understand the Fibroscan scan scoring as the nurse said it should be 12 or below but at 19.7 reversible x

CHRISR999 profile image
CHRISR999 in reply to

It can be reversed but u must not drink or smoke at all with that reading. And it will take time. Mine took 2 years. Diet, exercise, and nothing harmful.. Keep focused and you should be fine. Best wishes Chris x

in reply toCHRISR999

Thank you ChrisThe whole thing is terrifying

They found the Scarring by accident and my Liver function tests are normal and I have no symptoms

I don't smoke but maybe too many glasses of wine but not touched a drop since December

I have no support from the medical profession and getting more depressed reading things on the internet xx

CHRISR999 profile image
CHRISR999 in reply to

Your doing fine then . If you no symptoms your lucky. The symptoms can be hurrendous. Now it's time to love your liver. Your in a good place to do it. The liver has its own mechanisms to breakdown scar tissue and repair. But u must keep on the right track. Not a drop of booze. Nothing at all. Your bloods are fine so that's a really good indicator that cells are not dieing anymore.. Best wishes. And try not worry or goggle. That won't help

Hillbil profile image
Hillbil in reply toCHRISR999

How did you do that I'm worried that when I go for my first check up it will be worse I've changed my diet and lost 2 stone

CHRISR999 profile image
CHRISR999 in reply toHillbil

If your drinking and remove the toxin that's caused the problem it can repair. The liver repairs but constant abuse doesn't give it chance to repair. It needs to rest now. My doc once said to me stop worrying your liver will sort itself out. And 2 years later my reading are normal. I've reversed it so it can be don't. It's a time thing

Hillbil profile image
Hillbil in reply toCHRISR999

Hi I dont drink I have fatty liver

CHRISR999 profile image
CHRISR999 in reply toHillbil

U will be fine then. Stick to a good diet. I had a grade 3 fatty liver the most severe. Now it's normal. It can be done. Try not to worry. Your liver is in a constant state of repair. Give it good stuff n time. You will get there

Hillbil profile image
Hillbil in reply toCHRISR999

I have cirrhosis caused by a non alchol fatty liver can this be reversed

CHRISR999 profile image
CHRISR999 in reply toHillbil

If you do all the right things then yes it can. Are you compensated cirrhosis or decompensated cirrhosis?

in reply toCHRISR999

Can you recommend any special treatment for healing the Liver Chris? Xx

CHRISR999 profile image
CHRISR999 in reply to

I just consumed alot of super foods. Fresh food. Anti imflamitey foods. Blueberry. Tumuric. Beets. Kale. Google super foods. I did that the whole lock down n my results were noted as remarkable by my consultant

in reply toCHRISR999

Thank you Chris I am going to try my hardest to change this situation

Is chocolate dangerous for your Liver?

CHRISR999 profile image
CHRISR999 in reply to

Just cut back have odd treat. Cut down on sugar and salt. I like dark chocolate so I have that. Lintte do one that 85% cocoa. And Morrisons do a chocolate with no added sugar. There quite nice. Exercise too. I believe that releasing endorphins helps toward tissue repair. I was told it may not be possible to reverse a grade 3 fatty liver. But against the odds I did it. X

Worriesalot profile image
Worriesalot in reply toCHRISR999

Do you mind me asking what your symptoms were Chris? Hope I can do the same as you, providing that’s all I’ve got.

CHRISR999 profile image
CHRISR999 in reply toWorriesalot

We're do I start. At beginning I felt shocking. Actually felt like I was dieing. Massive waves of feeling ill. Dibilitating. I had to Force feed myself for a month. Extreme fatugue. Weakness in my legs then arms. Really bad nauseated. In a right mess I was. But slowly started improving. Its a time thing. It's hurrendous but your not like it forever thank goodness. What's your symptoms

Worriesalot profile image
Worriesalot in reply toCHRISR999

Bet people are sick of hearing about my inactive bowels, losing hair(could be my anxiety state) vision sometimes not sharp, paler stools. I have plenty energy though, good appetite, sleeping not bad, hope it is fatty liver. Perfect LFT and clear scan. Sonographer says liver normal size and homogenous in texture.

CHRISR999 profile image
CHRISR999 in reply toWorriesalot

I think your over worrying. Fatty liver is reversable. Through diet n exercise. Trust me I'm living proof x

Worriesalot profile image
Worriesalot in reply toCHRISR999

Determined to get better. Good luck to you Chris, you’ve done brilliant.

in reply toCHRISR999

I haven't been told the Heptogist said not to be worried about it as it was an incidental finding only to find Scarring on my Liver shown on the Fibroscan He emailed me informing me the findings and emphasized my Liver Functions were normal and the bloods were also

He didn't seem concerned and said he would keep an eye 6 monthly and hopefully it reversed at this early stage xxx

CHRISR999 profile image
CHRISR999 in reply to

Think of it like this you have been found at a early stage. Many don't get found until its too late. You have dodged at bullet. Love your liver now you will be fine. X

in reply toCHRISR999

Thank you Chris I am not sure what will happen

Reading the Consultants email he quotes Scarring on my Liver is consistent with Cirrhosis but he is glad to say my bloods and Liver function is normal and my Liver is working normally

Don't know what to make of that and as he doesn't reply to my emails I am non the wiser but will never drink again

NICE guidance suggests 6 months follow ups with bloods and Scans

He is a top Heptogist originally from Kings so he must know his stuff?

CHRISR999 profile image
CHRISR999 in reply to

Early cirrhosis can be reversed. The lover has its own mechanisms to break down scars. The liver is so robust and a amazing organ. It's your turn to look after it now. Give it good stuff no bad stuff. No toxins at all. It maybe very forgiving this time but abuse it again I won't be. This is your Scarborough warning x

in reply toCHRISR999

Thank you Chris Being told in the Hospital corridor that Cirrhosis was found on an Scan by a Consultant who just walked off and told me that bloods were fine so get on life

That was 18th December and the Hospital was filling up with Covid

Came Home isolated over Xmas terrified and then goggled Cirrhosis on the internet

Oh God I am finished

Plagued the GP call centre and was referred eventually to shut me up to the Heptogist and got an appointment for May

I was scared stiff and eventually got a private appointment with him in March

I am feeling totally well and would have continued drinking up to now if the NHS had allowed but something made me stop on the discharge from the Hospital in December

So that's my story and it's hard to handle

CHRISR999 profile image
CHRISR999 in reply to

There 2 types of cirrhosis. Compensated and decompensated. If you had decompensated then this would be different. You would be very very ill. Compensated means your liver can cope with the damage. But not its time to let it heal. It can heal in the compensated state.. That's prob where you are. It's time that heals. Give it time and patience and get on with life. Your liver will repair as you go on living. Just don't abuse it again. That's the key x

in reply toCHRISR999

Thank you Chris my party days are well over now at 67 years old and the glass of wine is never again I feel so much better talking to you and the new better life is welcomed xxx

CHRISR999 profile image
CHRISR999 in reply to

Like I say the liver repairs but making lifestyle changes will help it alot. Keeps focused and do the right things and you will be fine x

in reply toCHRISR999

Thank you Chris I just had sugar free chocolate to celebrate the new me xxx

CHRISR999 profile image
CHRISR999 in reply to

Losing weight greatly helps a fatty liver. I followed a calorie controlled diet. I'm a 48 year old male. Daily recommended calories it's around 2500. I dropped to 2000 a day. Cut sugar down and fats. Used olive oil for cooking cooked fresh foods as much as poss. Lots about 1 n half stone over 12 months. N whalla my fatty liver had normalised x

in reply toCHRISR999

I lost 2 stone in 4 months with fear the only good thing that has happened but I am going to try and eat now and keep a healthy diet

CHRISR999 profile image
CHRISR999 in reply to

Eat good foods. And things will improve. Everything u put in your body going through the liver. Fats sugars. Bad oils.. Change those things and u will see results x

in reply toCHRISR999

Don't worry fish and chicken with vegetables and Fruits Never a sausage bacon or cake again xxx

in reply toCHRISR999

Hi Chris Just thought is hair colouring toxic for my Liver?

CHRISR999 profile image
CHRISR999 in reply to

Long as your not digesting it u should be fine. Try not to leave it on too long and try and do it in a ventilated room. The immonia might not be good to breath in x

in reply toCHRISR999

Thanks Chris being doing it the last few months needs doing again to brighten me up from that bad place and suddenly thought

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