Hello! My name is Holly, and I’m 4 months post transplant. I’m feeling more energetic and stronger, but my hair is coming out fast. I just ordered a wig, but I’m not sure I’ll ever wear it. I also have kidney failure and do dialysis . They’re trying to get me to move my catheter from my chest to my stomach so I can do home treatments. Has anyone done this? It seems more convenient!
I’m so glad to have found this group. Thank you!
Hello Hollypapa, congratulations on your liver transplant. I believe that your hair loss maybe caused by the anti-rejection medication you might be taking. One of the side effects in some people who are prescribed tacrolimus is possible hair loss.
After a while, the dosage amount will be decreased and hopefully your hair will start to grow back. Plus no doubt you are still having to take a whole barrage of different medications many of these can have adverse effects.
Nobody likes the thought of us losing our hair, so I'd turn this into a positive and laugh it off.
I'd use it as a badge of honour in memory of my donor, and I'd tell people that you have been led to believe that your donor was a distant relative of Yul Brynner.
Good Luck
Richard.
Hi hollypapa
Love the name😊I would just like to 2nd what Richard said regards your hair loss,the tacrolimus effects us all differently,in my case I had the proper shakes & headaches but eased as my dosage came down,as regards your kidneys unfortunately I have very little knowledge.
And I’ve now got to end with ‘who loves ya baby’
Huw
Hi, hair loss is very common post transplant, mine fell out out about 5 months post, doctors said it's due to trauma of major surgery, it did grow back again but curly. My kidneys were badly damaged after transplant due to the tacrolimus but not bad enough for dialysis, good luck and hope things improve soon.
Hilary💚
It seems a shame to have bought a wig & then not wear it. There are some really good YouTubers who give great advice on how to wear a wig & make it look natural. I would recommend watching "sugar, puff & fluff" as well as " Taz's wig closet". Many women wouldn't find hair loss to be a badge of honour, but instead find it distressing. 😪Using scarves or hats might also help to disguise hair loss, although this will depend on how much you have lost. I wish you all the very best & hope that they reduce the drugs causing this problem, allowing your hair to grow back.🧚♀️
Hello and welcome Holly.
Hopefully the post transplant members will share their experiences here, we would suggest to also raise any medical queries with your own transplant team too.
Take care 
Hi Hollypapa, My hair started thinning out shortly after liver transplant. Tacrolimus is definitely a cause, but steroids can also contribute to hair loss. I've researched all the side effects of all the meds I had been prescribed, and there are a couple of others that cause hair loss and skin issues. Unfortunately I am still on the original doses of meds (due to several liver rejections). My hair loss seems to have stabilized, but the trembling and shaking of especially my hands has not. And that is most disruptive in my life. I had one bout with kidney issue, received some in-hospital dialysis, but thankfully that has been corrected. Kidney values still off slightly but drs say it's not of any concern. I hope that you will regain you hair and otherwise be on a steady path to improvement. At four months you are still a "newbie" transplant patient. Things will get better!!
Hi Catfriend,
I’m a cat lover too! Have you tried propranolol for the trembling? It has worked for me, and I had it bad!
Do you mind if I ask you about your rejections? How long after the surgery did you know? That must’ve been really scary.
Thank you for your response about my hair. I hope it grows back!
Hi Hollypapa and fellow cat lover,
I don't think I tried propanolol. My doctors warned me not to take anything without checking with them first. And I don't recall asking them about this medication.
About the rejections: the strange thing is that you have no clue that it's happening. You feel perfectly fine. Mine were detected during blood tests that I had to take weekly. The doctors told me that, when you start feeling lousy, it is most likely too late. They caught the first one in the hospital while they were still adjusting my medication. After changing the doses a bit, I got back to normal. The second one was more serious. I had to be on an intravenous medication for two days and eventually was released after five days. That treatment was a little scary. The third one was the same. I was at home, feeling great, went for my weekly blood work and was called back to the hospital as soon as they received the results. I had two more, but not that serious. I've been stable now for going on a year, and I hope that's it. Bloodwork is now taken every month, down from every other week. Pretty soon I'll get to six months intervals. Hopefully I didn't scare you with my experiences. This does not happen to everyone and is not uncommon. Especially at my age - 76. (Had the surgery at 74)
Please don't hesitate to contact me if you have any other questions or just want to talk.
Wishing you a smooth, rejection-less recovery!
Inge
Notice of my intention to leave the group. 
Newbie: Feeling a bit lost & adrift
Newbie Looking for reassurance I suppose. 
New to group need help I'm so Scared
