Ggt not reducing after quitting alcohol - British Liver Trust

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Ggt not reducing after quitting alcohol

Lola109 profile image
20 Replies

Hi,

I have raised ggt levels. Was originally 280. I was a heavy drinker for years, bottle of wine around 4 days out of 7 but also lots of days off. After 3 months of not drinking my ggt reduces to 146 and after a further 6 months of not drinking it’s still at 147. Is it normal for it to stop decreasing? Should it have continued to decrease? Awaiting a Fibroscan, been waiting a year now! I don’t know how worried I should be that it’s not improving? I take no medication at all and am active and healthy otherwise other than consistent pain in my right side. Does anyone know if ggt ever reduces to normal or have I ruined my liver beyond repair? Thanks

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Lola109
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20 Replies
Hillclimber72 profile image
Hillclimber72

You need to speak to your medical professional. You shouldn’t be waiting that long for a Fibroscan. My consultant was concerned with me as my results were static

Lola109 profile image
Lola109 in reply to Hillclimber72

Thank you for your reply, I have asked the gp to do me a referral letter and I will just pay to go private but 3 weeks later and she’s still not done it. Can I ask if your static results did eventually improve? I don’t think the doctor believes I am not drinking so she’s not helping but I know I have and that it doesn’t help. Did you get to the bottom of yours?

in reply to Lola109

I got a private appointment with a gastro within 4 days ..cost £200 quid and was worth every penny!

Lola109 profile image
Lola109 in reply to

I’ve been quoted £489?! And they won’t do it without a letter from my doc which I’m still waiting for

in reply to Lola109

I went to BMI priory, no referral required and £200!!! He also works for QE hospital in Birmingham so kindly referred me to his office there for ultrasound and CT scan etc so I didn’t have to pay! Couldn’t have worked out better. BMI are all over the U.K. so try your locals one x

Hillclimber72 profile image
Hillclimber72 in reply to

They are hot there you’re in good hands. Regarded as one of the best in Europe!!

in reply to Hillclimber72

I notice a lot come to the QE a for treatment. Shame they don’t have an autonomic unit here as I’m having to go to London.

Hillclimber72 profile image
Hillclimber72 in reply to

Did you see Dr Rajoria

in reply to Hillclimber72

No, I’m under a gastro doctor...

Laura009 profile image
Laura009 in reply to Lola109

Hi lola. Keep ringing and emailing the doctor until the letter is done and sent then check it has been recieved.

Good luck xx

Hillclimber72 profile image
Hillclimber72 in reply to Lola109

No my levels are still static that’s after 8 months . The difference is I’ve had a Fibroscan in my case I need a transplant. You need to be referred to heptologist

DB50 profile image
DB50

Hi, mine took ages to reduce, and was still elevated slightly (20% over top of typical range) well over a year later. My consultant wasn't concerned when I met him yesterday, and discussed results in a lot of detail; it didn't even come up, everything else is within range. Other factors can elevate GGT. I don't want to speculate on what your values might indicate, but I can say that there is a great risk in taking one reading out of context, without considering the overall picture.

I also booked a private appointment (BMI), as mentioned by others here, £489 does sound expensive. I was an existing patient, and perhaps because of this wasn't asked for a referral letter. I'd be surprised if your GP hasn't provided one because they suspect you're still drinking, probably just very busy. Have you tried Livi? I used them when the GP was open as normal, pre-lockdown, and they sent one almost by return. Keep chasing!

Good luck!

Richard

Lucky87 profile image
Lucky87

Hi, I have elevated ggt. Mines 216, doctor told me it can be from anything from a virus alcohol or most commonly now fatty liver. Have you been for an ultrasound? They’re not retested my bloods as I had a liver condition during pregnancy so sent me for a scan I’m waiting for it to come through mine. I don’t drink a lot or didn’t think I did I’d have maybe a glass or two of wine a night maybe not even that! Sometimes a bottle on the weekend. So maybe it a lot but I’ve stopped drinking and started eating healthy because I wasn’t eating very healthy either. She told me if you have fat anywhere on the body it will sit on the liver, not sure how true it is.

Roy1955 profile image
Roy1955

£200 would be consult only, £489 would be cost including fibroscan.

Full liver consult including bloods, ultrasound, fibroscan and full body physical would be around £1200.

You can self refer and be seen within days. (pre covid)

London clinic Harley st or

Royal free hospital London for the full work up.

Many others are available.

in reply to Roy1955

I paid the £200 and got an ultrasound and CT with contrast after for the £200. Guess I got lucky that the consultant was also working for a local NHS hospital.

Cat-B profile image
Cat-B

Are you taking any pain killers? My GGT has started decreasing again after 18 months of no alcohol or pain killers, so keep going it takes time and hard work. Good luck and stay safe

Lucky87 profile image
Lucky87 in reply to Cat-B

Idk if that was my problem. I was told to take ibuprofen 3 times a day for 14 days. One night I slept all way through without hearing my son crying first time in 3 years! I stopped taking them after I had my bloods done for something else and that flagged up. He accused me of heavy drinking and told me to stop drinking or I’ll die and I was really taken back as I didnt think I drank a lot. My own gp was furious with him 🙈

Lola109 profile image
Lola109 in reply to Cat-B

Hi, I haven’t taken any medication for over a year in ana attempt to get it down. Did yours stay at the same level for ages then after stopping alcohol and pain killers before it started decreasing? Thanks

Cat-B profile image
Cat-B in reply to Lola109

Yes it stayed over 150 for about 10 months is now 67 , so hang in there and keep keeping your liver as healthy as possible x

Friendlychic profile image
Friendlychic

Mine is decreasing but much much slower than what I thought. I also went private and it cost £210 and was worth every penny.He explained it can take anything up to 2yrs to fully return to normal levels. So much depends on other factors, meds, smoking, lifestyle but if it’s going down and other results are ok then that’s a good sign. Mine is still high but after drinking for over 25 years heavily it won’t reduce overnight. I am now on 6 monthly tests so all good.

Try not to worry

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