I have been a member of this forum since my mum started getting severe complications from her liver cirrhosis at the beginning of the year.
I had no idea what was going on, and I was besides myself with worry.
I never really got a proper explanation from the doctors, but I don’t want to throw blame as they did try their best to save my mum. I just think that due to the virus and not being able to see a doctor or go to the hospital just didn’t help matters.
But out of desperation I joined here. When I posted my worries I was so grateful to the amazing people on here that helped me understand this very misunderstood disease. Thank you!💜
My mum was in hospital for 9 weeks due to HE. She had it for a lot longer than that, as I look back and now I know more about it. I can see.
But back then I had no idea what was going on? I was thinking she has Dementia and all sorts?
Poor mum must have been so scared.
I was finally told she had severe HE and fluid in legs..ect
She was up and down for the whole 9 weeks. One day she was improving then a few days later she would be going back downhill.
It was such a terrifying time, especially as my mum had to go through it all alone as I wasn’t allowed in to the hospital to be by her side. I will always feel guilty about that.
Her kidneys started deteriorating by the 9th week.
Three weeks ago I got the call that there was nothing more they could do for my mum and she was to be moved to our small local hospital for palliative care.
I was finally able to be with her there. I was there all the time with her. Trying to spend as much time with her as possible.
Yesterday I got a call at 4am to say that she was deteriorating. I was there in 5 minutes and spent the next 13 hours watching my mum die. She passed away with me holding her tight.
I am absolutely heartbroken.💔
Facing a world without my mum is scary.
But I also have to be thankful that she isn’t going through any more pain.
It’s always been just me and my mum since my dad left when I was 5 years old.
She struggled to bring me up. But she carried on and never gave up. She made me the strong woman I am today.
Really sorry to hear of your loss Jonesie, it's been a difficult year all round but especially so if you've gone through the hospitalisation and loss of a loved one
Dear Jonesie I am so sorry to hear about your mum. You were there for her and I'm sure she knew that. Take care of yourself and remember all those good times you had together. X
I'm so sorry for your loss. Such a sad story, although I'm glad you were with her at the end, I'm sure that gave her great comfort. Being without your mum will be difficult, but as you've said, she has made you strong.So in time, with her voice in your head, and love in your heart she would want you to live your life with happiness and joy, to enjoy everyday and therefore keep her memory alive. I really hope you are able to do that eventually.
Oh Jackie l am so so sorry to read this. All the time we have been in contact you have been so strong, learnt such a lot about something you initially knew so little about and the love and adoration you have for your Mum has been incredible. She would be so very proud of you. You have a tough, painful road ahead sweetheart but you will get through it with the love and care from your family and though you won't see her, you will feel your Mum around you always.
Ah, you are a lovely lady. l just wish the outcome could have been a better one. I'll be here if you need any more support... l promise xx
💜
So sorry about your loss, please take solice in the fact, you were there for your mum throughout all her health issues, helping her along the way and that's worth its weight in gold. Take care Jonesie, you need to talk were all here for you. Thinking of you.
Dear jonesie, I am. So sad and sorry to read your post. It is such a horrible disease but you did everything you could to help and get help for your Mum.
So glad you were able to be with her at the end, take some comfort from that. She will have known you were there with her.
Sending much love and a huge hug.
I lost my Mum last December (nothing to do with liver disease) and then my husband in February this year, so I know the heartache you will be feeling. 😘
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My mum, advice greatly needed
Advice for mum
Mum sadly passed away today.
