Medically suspended : Hi all Hope you... - British Liver Trust

British Liver Trust

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Medically suspended

Rockefeller20 profile image
4 Replies

Hi all

Hope you all keeping well. I’m eighteen months post live transplant and posted a couple of posts. (Moaning mainly)

So like most been isolating for the above reasons and tried to go back to work on Monday the seventh only to be told that the company are medically suspending me.

They haven’t given a reason as yet as to wether it’s for covid19 or my last medical report from the works doctors, who said I’m ok to return to work but make sure ppe is strictly adhered to.

But if it’s COVID I’m wondering if I actually caught it what would the chances be of dying from it because I’ve had a transplant.

Yes admin I’ve mentioned the do not mention COVID word.

But some of us need to find out if anyone has in my position contacted it and what the survival rate is For transplant recipients. as to date nobody has mentioned nothing in particular like Our government or health authorities

And no doubt this will come with a do not mention Covid19 again post attachment.

All the best x

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Rockefeller20
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cammeag profile image
cammeag

Hi R. I am also a member of a very seriously disabled health group. A good few on there did get c19😊. According to figures collated the survival/mortality rate for liver disease sufferers or post transplant individuals, is no different from the population of UK as a whole. Take care.

David.

Good morning Rockerfeller20,

With regards to your work situation, it may be worth speaking with the occupational health department to clarify or you may also want to contact ACAS, they have an online helpline to assist with work related concerns:

acas.org.uk/

With regards to COVID-19 risk in liver transplant , there is little data available, I have attached the information from the British Liver Trust website from July -

Coronavirus is a new disease and we are still learning every day about the risks it poses. There is very little published data relating to chronic liver disease, however recently an international collaborative registry has been set up to monitor what happens to patients with chronic liver disease who develop coronavirus. The analysis of this data is being undertaken by teams at the University of Oxford (UK) and University of North Carolina (USA).

The initial preliminary results show that sadly people with liver cirrhosis have poor outcomes. This worldwide data shows 25% of people with cirrhosis disease who contract coronavirus are admitted into intensive care, 17% are placed on a ventilator and 36% sadly die (combined weekly update dated 12 May 2020).

The rates of death in patients with liver disease are much higher than those observed in the general population where studies predict between 3-4% of people who have tested positive for COVID-19, die.

These results do sound very alarming. However, it’s important to remember that this data is subject to bias – doctors often only submit data to the registry for the most serious cases they see and more than 90% of patients in the study were admitted into hospital. Many other people who have contracted the virus at home, may have recovered and will not be in these records.

As the UK begins to relax lockdown, this new data does suggests that we need to make sure that everyone with liver disease continues to protect themselves from this virus by strictly following social distancing measures and that those with ‘decompensated liver disease’ follow the stricter shielding advice. The British Liver Trust is taking this issue up with the different UK Governments to seek further clarification. In the meantime, if patients are concerned about their own situation, they should contact their own liver specialist to obtain specific advice from them.

Best wishes,

Trust9

Tony_Aitch profile image
Tony_Aitch in reply to

That's funny (not)! I have "decompensated liver disease" (ACLD) and have been hospitalised for HE and yet I heard not one peep from anyone at the NHS. My wife, who has completely asymptomatic dormant leukemia (CLL) was immediately told to shield!

in reply to Tony_Aitch

Hello Tony,

May I suggest you ask your liver consultant or GP to clarify your risk and for specific advice.

Take care,

Trust9

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