CAMPYLOBACTER JEJUNI BACTERIA

[Peeps7]

My husband, Peeps, 82, first diagnosed with cirrhosis from AIH, six and a half years ago has defied all the odds. He has had every symptom, yet is still with us despite his chronic liver failure. He has been regularly hospitalised for everything but his biggest problem is HE. He was last hospitalised in January and after a week was diagnosed with Campylobacter - the diarrhoea, fever, delirium and dehydration inevitably trigger his HE and he had another bout of same a couple of weeks ago. It was originally suggested by his specialist that it could have been triggered by food poisoning. It has recurred and it has been incredibly difficult for me to treat and care for him at home especially with rampant HE. Has anyone out there had any experience of same? We are having another telephone consultation with his specialist on Monday but that is the only source of help. Thanks, Anne.

[Lilyrosemarie]

I was wondering how you were getting on Anne. Take care. Love Christine and Toby xx

[Hidden]

Hi

Just to ask how you and Peeps are? My thoughts and prayers are with you both. Thinking of you. Love and hugs Lynne xxxx 😘♥️

[Peeps7 in reply to Hidden]

Thank you Lynne, we’re not but thank you for your kind thoughts, really appreciate it. Love, Anne xx

[Hidden in reply to Peeps7]

Take care and stay safe. All my love Lynne xxxx ❤️ 🤗

[Peeps7 in reply to Hidden]

♥️😘♥️😘

[Hidden in reply to Peeps7]

You can pm me anytime. Love and hugs Lynne xxxx ❤️🤗

[Hidden]

Hello Peeps7,

I am glad to hear you have appointment with the specialist on Monday.

I have included links to British LIver Trust information regarding Hepatic Encephalopathy - I am sure you have seen this before - but just in case it addresses something new

britishlivertrust.org.uk/in...

Also, there is a new section about 'questions for your doctor' at the bottom of the patient charter information which may help your consultation.

britishlivertrust.org.uk/li...

Take care of yourself too,

Trust9

[Peeps7 in reply to Hidden]

Thank you so much for your helpful reply. I have downloaded same, we have all the resources regarding HE but I have never seen the Patients Charter thank you. It makes for a very helpful, informative read. Much appreciated, Anne.

[nhooven14]

Has his Doctor talked to you at all about having a TIPS procedure?

[Peeps7 in reply to nhooven14]

Thanks for the info, no, we are unfamiliar with the TIPS procedure but will discuss same with Peeps consultant today. Many thanks, Anne xx

[Dragonheart11]

Hi Anne I’m relatively new to this group and was wondering how medically you control your hubbies HE ??