Good morning everyone. I had my appointment at kings on Monday. I saw a lovely consultant called Dr Harrison. He is confident he will be able to get to the bottom of the liver issue. He says it is complicated and he may not be able to answer all my questions but he should be able to answer most of them especially the liver issues. I have had loads of blood taken testing for rare diseases of the liver and bile ducts. I am going to have an mri and another fibroscan and go back in 6 to 8 weeks for the results. I feel much more positive and kind of relieved that I will more than likely get a diagnosis soon. I will keep you all updated. Thanks for the support you have all been great.
Update after appointment at Kings - British Liver Trust
Thank you for your support. I'm not sure which test takes 8 weeks but it was a genetic disease. The issue I have is that my common bile duct is not draining which could be an autoimmune disease. The liver biopsy looks like possible pbc but it's not what they would expect to see if the bile was flowing back into the liver so its complicated. Will update everyone once I have my results at my follow up appointment.
Hi there, I had these blood tests too and they were pretty vague about which ones they are testing for, but JAK2 is one of them and they do take this long to be processed. In my case they were looking to see if there were reasons for my blood clotting. In my case nothing " of interest " came up! However, it then confirmed that my liver was the culprit, they just wanted to be sure they weren't missing anything. I hope they solve your puźzle. All the very best.