Varices bleed help

[Whitelock]

Hi all husband has cirrhoses and varices. Waiting for confirmation for him to go on transplant list. Went to Spain and he had his first major varices bleed. Had to call ambulance lost a pint of blood. 2 days in Spanish hospital. Back in UK now. His stomach swollen and keeps getting a stitch in right hand side Can anyone help and advise what this is ?

[AyrshireK]

Have you made his doctors aware of the bleed and treatment in Spain? It sounds like he needs to see his doctors a.s.a.p. and perhaps the arrangements for transplant assessment put in place.

Katie

[Whitelock in reply to AyrshireK]

Yes I have informed the liver team of what happened in Spain and the bleed. The liver team were waiting to make final decision about transplant list before the bleed. As they found hole in heart when assessment was done. Heart specialist ok to undergo op for transplant. Not sure if now he’s had bleed that puts him priority. I am concerned about the stitch pain he has on his right hand side and belly swollen.

[AyrshireK in reply to Whitelock]

When is his next clinic appointment, the swelling sounds like it could be ascites. This needs checking as soon as possible.

[Popel in reply to Whitelock]

Hi.its a massive pressure waiting once referred then to go through the process of worrying wether your body is actually healthy enough to have a TP.so I feel for you.but lots have gone through this trauma of worrying.i look back now and I’m thinking why was I stressing so much but you do especially if your life depends on being given the all clear for a TP.and the bleed will definitely push him a bit further up.i had a massive bleed between assessments and wonder how I actually got to them.because every bleed knocks you on your arse but the more you have the longer to recover and the sicker you seem to get.i hope you get listed so just stay strong your not on your own we’ve all been there.lots of love to you both.paul. Ps.also with my fourth bleed it seemed to accelerate the asities and the gastrointestinal problems and pain in my left and right side. The right Side being my enlarged spleen.that is in as much pain as it was pre TP.but other than that I feel great.

[Whitelock in reply to Popel]

Thank you for help and advise. We speak to liver team in the morning. To see whether to go to them Cambridge or local hospital in Colchester. Keep you posted

[Whitelock in reply to Popel]

Hi just to let you know he’s having ascite drain Tuesday. Also got fantastic news he’s on transplant list so relieved he’s on.

[Popel in reply to Whitelock]

Congratulations really happy for you both.its a momentous moment and relieves a bit of stress now you can both see the light at the end of the tunnel.im three months post and I won’t lie it’s been a struggle. I wasn’t really expecting the length of time to recover but I’m getting there and now look and feel great.just today my two daughters were shocked at how well I look after not seeing me for a couple of weeks.its a gradual deterioration of your health with cirrosis as you know and you actually get used to being Ill and don’t realise how sick you actually are.i hope your wait is quick.mine was three months.so here’s hoping and I’ll keep my fingers crossed for you.paul

[Whitelock in reply to Popel]

Thank you so much. Keep you posted

[Whitelock in reply to AyrshireK]

Thank you. Talking to liver team tomorrow to see if he needs to go to hospital. Spanish doctors said for him to rest.

[Hidden in reply to Whitelock]

Hi

I hope you get the help you need asap. Please let us know how he goes on . Thinking of you both. Love and hugs Lynne xxxx

[Whitelock in reply to Hidden]

He’s having drain tomorrow and received great news he’s on the transplant list

[alfredthegreat in reply to Whitelock]

Great news about being on the list