Being considered for listing

[Gfdee]

Hi, my child pugh score is 8 just now, ukmeld 50. Pbc aggressive into the main liver. Bilirubin 70, jaundiced. Queen Elizabeth allowing my pre paid holiday in April at a push but want me to be assessed and meet the team within a week after my return as they feel my liver is really struggling. With an O+ blood group I gather there is quite a wait. They are saying by the end of the year. Is that feasible?

Also i am showing liver decomposition.

[Dave5]

Availability is an issue of course but priority is based on current need, not how long someone has already waited. So if they decide you're a high priority you'll be higher up the list.

So, yeah, it's feasible.

I'm fairly new to this but I'm hoping that should have read decompensation rather than decomposition.

[AyrshireK]

If you are scoring 8 on that Child Pugh scale that's Child Pugh B (A is least severe, C is most severe). Minimum UKELD for listing where there is a chronic liver condition (not HCC) is generally 49. So as yet you at that borderline stage and fingers crossed are far from 'deaths door'. It is best to get assessed (best full body MOT you'll ever get) and listed and you hopefully have the capacity to wait. O liver wait can be lengthy as although it is the most commonly donated it is also the most in demand and has the longest waiting lists plus O livers can be given to non O patients.

The new allocation system is now national so it was hoped it would reduce people's wait time - waiting time was going to be factored into this new system whereas it didn't with the previous local centre based system. Donor liver is always matched with the person who is most poorly who matches the donor organ in both blood type and body size.

No one can predict when you would get your organ it all depends on your level of health compared to others waiting. The most poorly will always be priority.

Good luck with it though.

My hubby was listed for 10 months but since he was only borderline to start off with and his blood tests improved he was delisted.

Katie