So I’m 2 years and 4 months on from cirrhosis diagnosis along with portal hypertension and baratts syndrome.
I’m none the wiser now than when I was back then, still terrified, still clueless, still not being told anything about my illness or what stage I’m at ( they said at the beginning I had 2 years to live so I stopped drinking there and then and have not touched a drop since)
I was sent for a transplant assessment but was refused on the grounds I have no social support, no family around me or anyone to help after surgery.
Since then I have improved a lot but I am extraordinarily tired and have put on 2 stone in weight.
I hardly ever see a doctor, never my gp, a local specialist maybe twice a year and kings college 2-3 times a year, this scares me massively as I don’t feel like I am being monitored correctly or enough, I’m afraid of slipping through the net and it becoming too late for me to be reconsidered for transplant.
I hate taking all these pills constantly
I’m on this list of pills plus lactol ode which I cannot bare so I don’t take it.
I stopped my medication about a month ago, all of it because I’m sick of seeing all the bad things that can happen. I have not told the doctor.
I have a set of bloods taken a month after I stopped and nobody as usual has explained them to me.
If Anyone knows how to read them could I please send them to you ?
Also if there is any reason I should definitely take one or all of the meds?
Thanks in advance x please let me know if I can post you my results