The Spoon Theory

[Gemma68]

butyoudontlooksick.com/arti...

As we have lots of new members I thought it might be an idea to post this here, hopefully it will help in some small way. 😊

This was originally written by Christine Miserandino about the way she explained Lupus to her friend and how she struggles on a daily basis. It has since become a disability metaphor.

I found this a while after I was diagnosed with AIH and it helped so much when trying to convey the difficulties on a day to day basis when you're living with fatigue.

[carole-shaw]

Just read this now and it’s a clever way of trying to explain my illness. I am always lethargic and no energy feel sick a lot of the time no appetite in pain everyday I have polycystic liver disease and look quite healthy apart from being very thin. I’m am always trying to explain to people why I can’t go out for food or days out now I can show them this.

Thanks

Carole

[Gemma68]

Glad to help! It's a difficult thing to have an "invisible illness" when it comes to friends and family who don't understand the full extent of our situations. 😊

[carole-shaw in reply to Gemma68]

My friends and family have been great with me but I just feel like I’m letting them down sometimes when I don’t won’t to do anything or go anywhere just because I feel crap. I try my best to join in with everything but it’s getting harder. I’ll stop moaning now there are people a lot worst of them me xx

[Gemma68 in reply to carole-shaw]

You're not moaning, yes there are people worse than us but there are a heck of a lot of people that are better than us too! I can understand it's difficult to turn down activities, don't punish yourself by feeling guilty for declining an invitation, you have to make your health and wellbeing a priority and never apologise for it! 😊

[Hidden in reply to Gemma68]

Hi

I quite agree. It's my niece's 21st in a couple of weeks but I've had to say it will depend on how I am on the day as I also have other things roo.

Nash was caused by meds drs have given me this last few years!! Love and hugs Lynne xxxc