British Liver Trust
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Pip claim

Hi everyone

Hope you are as well as can be.

Got my pip face to face on Sunday. Very anxious. I've had some advice already , just wondered if anyone else could give me anymore advice please. Love and hugs Lynne xxxx

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Good Luck, i hope it goes well for you xx

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Thank you xxxx

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hi i had mine before xmas this was my first review after the initial 2yrs of receiving at standard rate on care only my interview in birmingham last a very tough hr be as honest as you can be prepared for repeat answers they will ask u a question then 10mins later throw it in a again i got fed up of saying same answer in end there will be a 2minute moving and remember test at end well they call them neurological ie stand on one leg crouch down move head s to s and squeeze fingers remember its not about what u have its how it affects u good luck i have pbc +fibro+osteo arth multible places but got ip at standard rate plus mobility at stand rate as well

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awarded for usual 5yr

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Thank you so much, your reply was really helpful. Did you have to go to appeal or did you get it after your face to face? Take care. Love and hugs Lynne xxxx

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I had a pip assessment last year, didn't get any points, went to appeal which was upheld, so went to tribunal, it's a long process but if you deserve you will win as I did, good luck

Best wishes Jeff x

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Hi Pattie, great news on your second award! And so right aswell.

Did you say you have been awarded pip for 5 yrs? .. i have full care and mobility due to my cirrhosis and osteopenia in right hip with onset of osteoarthritis and two prolapsed discs middle to lower back. I started physio two weeks ago and it's bloody worse. 😂😂🙄x

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yes thats normal i believe well with everyone else i no who gets it has gone thru same experience your lot sound painful i had physio for 4wks i know they say no pain no gain but coz of the fibro i could nt stand it i wimped out i was having it for a shoulder prob i now do some of the exercises while in shower certainly helps while warm water running

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Oh i see , thank you for your reply Pattie

My daughter has fibro so i can understand why you chickened out.

They told me it was to strengthen my surrounding muscles to help ease the pain but how that one works i have no idea ?? .i will continue with it for a few weeks just to see ,but if i get no joy i won't bother again.

I cant use a bath, i have a seat under the shower that was adapted for me . Will give them a try .thank you Pattie. 😊

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sorry to hear daughter has fibro it sucks and u have enough on your plate good luck with physio

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It sure does! Thank you Pattie. Take care

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Thank you so much xxxx

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I've got oestepenia and cirrhosis do you think I could get the upper award

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Depends on how it affects your daily life. . 8 have occupational therapist and physio plus support from social worker. If it dbilitates your every day life and you have medical letters then you have nothing to lose really but try ! .

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Thank you so much xxxx

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Your welcome hun xxx

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Thanks Millie, I am in constant pain, I'm back on the booze again, sorry to all of you that have been so supportive, guess that's how life goes, collapsed last night, don't know if it's alcohol or diabetes x

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Oh dear.. back pain is the worse.

Ok , so you caved in to the Demon drink again. Was it the craving for it or is it a psychological craving? IE.. Saturday night, so i must have a drink etc

How much did you have if you dont mind me asking, you really shouldn't drink with cirrhosis but then you know that already

Did you see the news over the weekend? .

Dj AVICCI .. 28 yrs old . Alcohol related death...verne troya.. Alcohol related death.. .. i will leave it there. X

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Yes I saw all of that, but why doesn't it affect me (cognitively), it's like I want to drink so I will, it's crazy, yesterday I had 3 bottles of wine before midday, and I don't know how many pints, am I stupid !! Hmm yes no answers please x

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foxman55 please forgive me for intruding on your choices but should u feel so inclined try looking up /googling Intuitive Recovery ... Has worked/ helped some of the peeps which I have come into contact with ... Nothing ventured nothing gained or so they say ;) all the best :)

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hi hope u don t mind me stivckin nose in im not sure my pbc had anything to do with me getting award it was more the fibro with me plus cpl of arthrits bits but the ostepinia might help u but like millie z its a case of how it affects your daily life not the names of illness if u no what i mean but just remember if u do challenge there decision could lose everything might pay to wait for your review unless u have new evidence to support your change in circumstanced as they call it good luck

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Thank you so much. Everyone's support means such alot. Love and hugs Lynne xxxx

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They've decided bi don't have osteopenia now!! It's all down to fibro and liver mainly!!! Xxxx

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well i suppose its good news in one way u don t have o/p but hopefully u should be ok still x

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How can you not have osteopenia all of a sudden if you have been diagnosed? .. i know i was told it will not get any better. Hence why i now have onset of osteoarthritis. Keeping my fingers crossed for you lynne xxx

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That's what the podiatrist thought after X ray but then after dexa scan was told I didn't have it!! The mind boggles!! Xxxx

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I have o/a in my knees and spondylitis in my lower back xxxx

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Very true Pattie, yes my cirrhosis has its problems but it was my osteopenia in right hip with onset of osteoarthritis and two prolapsed discs middle to that awarded me my high mobility pip. As you say, if you have all the right supporting medical letters then try for it foxman

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Yes I got go in July 2yrsafter op I'm waiting on pip she left me front door open as I could not see her out so shouted for daughter tip or a trick ?

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I had my sister with me so she opened the door and made the coffee. 😉

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Who's that in photo

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I never got to the coffee stage to ill was gonna stay in the bed .got anther form like a novel driving me insane

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I really feel for you, it must be so hard. Lots of love Lynne xxxx

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trick defo when i went for my first claim it was early evening in winter she z halfway thru oh look how dark its gone naturally looked round it was noted in report i had no trouble turning head

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Yes I no just giving a tip as being in fear in me house C-PTSD just thought I let all no as If I complain what I get knock back if I do I will mp better be ready

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They left me front door open I'm dreading getting my result as I have so many things I started crying saying all I want to do is leave theses 4walls no help never ending mental pain body pain whatch every yr see if any growth got bigger what do they want it made me I'll .but with me it's the waiting

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Youve got alot to cope with. I have got non alcoholic steatohepititis, fibromyalgia, gastritis, IBS, diverticulitis!! Xxxx

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Sometimes the list is endless that's just me prescription

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it feels like that at times we all have our bad days u must try almost imposs i no not to dwell u need a distraction xc

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Yes I do but got bit much to take as in I'm still ill and under no one now .

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How u getting on with everything,sick of looks at the letter box!

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no appeal and u can ask for a copy of your report this is very useful not only is it hilarious on some of the things they say but also is useful if u do need to appeal as u can see where they mark u on as its marked out of 8for care and 12 for mobility if u use any aids in hse like for cooking or personal care these all score points

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Thank you so much, very useful to know that you can ask for a copy of report. Love and hugs Lynne xxxx

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Hi Lynne

Are they coming to your house or are you going to a specific centre for the assessment?

I had mine last year and at that point I was paralysed from the waist down so the nurse came to my house. She was extremely pleasant and basically asked me questions about the information I'd provided on my form - there were a couple of physical assessments regarding how far I could reach, transferring from a wheelchair to a bed, sofa or toilet and bathing facilities and whether or not I required any help. My advice would be just answer everything as frankly as you can, I am no longer in a wheelchair but I hated having to rely on other people and had a tendency to 'play down' my condition. It was only when I completed the application that i realised I'd be pretty b*ggered without any help! My mam was my carer at the time and she sat in the assessment with me as she knew how much I relied on her and was able to add her view on the situation. I was awarded basic and higher for living - i was 1 point off receiving higher for both. I did appeal this as the copy of my report/assessment stated I managed to get up with assistance and lie down on the floor! Given my paralysis at the time I think I would have remembered that!

I wasn't successful at appeal and I got asked to go for a face to face appeal to argue my case, at the time there was a lot going on and i didn't take it any further.

I hope this has helped and given you an idea of what to expect - they're not looking to catch you out they just want you to expand upon the information in your form. I got mine in June 2017 and it was backdated from the day i was discharged from hospital.

Good luck! 😊x

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How the hell did they report that! When you were paralised at the time. The mind boggles..

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Thank you so much. I use a walking stick to help me get around and my husband has to out my socks in for me!!! Take care Lynne Xxxx

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Put not out !!! Xxxx

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Good luck lynne!! I had my pip assesment at home last October. I did have my sister there as support and i had my waking stick and perching stool so they could see my mobility was restricted .but omg!! The questions they ask! The Things they get you to do is a joke! . Just don't ask them anything, keep quiet and only reply back yes or no to what they ask you. Remember they are assessing you on how you would be on a bad day.. i dont see you having any problem Lynne.. my next review is in April 2020 .. if im still alive. 😂😂xxx

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Thank you so much xxxx

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Good luck lynne xxx

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Don't say that I really cried I'm waiting on the decion they came to me in end after telling me I'm violent . She left front door open I obviously have c-PTSD and can't walk far 6steps if that called daughter she shut it nice tricks they do

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If I can do it you can I promise I absolutely terrified they came round to me but she left the front door open !! Daughter upstairs so I got her to close it as I could not get to it, lady was still in driveway.bit worrying if I had not been sitting direct to door .so that was my tip and think there trick now I'm waiting on that letter to come back.your be fine honestly but remember there job only as much as I wanted to tell her all me problems they ain't gotta live it daily so ????

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Thank you so much xxxx

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