HI Guys!

[rpbridgey]

Hey,

Ive stumbled across you guys and just wanted to say Hi!.

I personally don't have liver disease but my farther does. He has been under the car of the QE in Birmingham for about 6 years but then transferred to the London Free under Prof. Pinzani.

He is about to undergo the first round of assessments tomorrow at his appointment to get onto the transplant register.

He also suffers from Hepatic encephalopathy, Does anyone else suffer from this?

[Chelle_]

I am lucky that I don't suffer with HE. Have they prescribed your father any Lactulose or ramafixin (I think that's the name) to help him? How come he has been moved down to the Royal Free for his assessment? Will they not see him at QE - sure that's a transplant hospital too! x

[rpbridgey in reply to Chelle_]

Yh he is on lactulose, ramafixin has never really been suggested.

Yh QE is a transplant hospital but we wasn’t getting anywhere :/ they was just monitoring him with no action. So we asked to be transferred down there. The London Free have been amazing!

[Chelle_ in reply to rpbridgey]

That's good news - I am on lactulose 4 x a day it is horrific! So they obviously think he is a viable candidate for transplant or they wouldn't be doing an assessment for him? So long as he follows all the rules about what to do prior to tx when I am sure he will be good. It's not easy mind being on the list.

[rpbridgey in reply to Chelle_]

Yh apparently it tastes awful and the affects arnt great either from what he has said. Yh they do it’s just going through the processes.

He will follow the rules and we won’t let him slip!

[rpbridgey]

Sorry to hear that your transplant was unsuccessful :/

HE is terrible thing to have deal with let alone live with it!

He was transferred down to the London Free due to getting no where with the QE all they was doing was “monitoring him”

[Hidden]

Hello,

Welcome to the forum.

Glad that your father is in the process of getting the assessment and care that he needs.

However, we need to bring to your attention the British Liver Trust / HealthUnlocked guidelines for using the forum.

"Users are asked NOT to post anything mentioning specific doctors or health care professionals by name as there could be legal implications for the author of the post and the forum should that post develop into something contentious or libellous"

This is to protect all concerned and shouldn't make it difficult for you to get support and advice from other users in this community.

yours,

Volunteer moderator

[rpbridgey in reply to Hidden]

Sorry

[Litimag in reply to rpbridgey]

Don't worry about it, lots of folk get pulled up for wee transgressions 👍

It's a friendly forum really, very supportive.

Best wishes for your dad 🙂