British Liver Trust
13,651 members6,726 posts

confused ... again

no scaring so don't thing liver cirrosis however had camera down throat on Wed and found some veins "means" it is probably cirrosis but done know how bad. every day is a up and down rollercoaster, one day "making a great revovery" next "oh dear there are veins albeit small" discussed various options such as tablets banding etc but want to leave for now. last visit consultant said everything slowly going in right direction so felt good for day or 2, went a and e with pains in tummy and nuae came going through notes with me ... explained the child Pugh scale etc gave me a paracetamol and sent me on my way, got home to Google my score as you do and dead in a year ... mentioned to consultant who didn't seem concerned.... one step forward and 10 back but with little explanation of the 10 ... confused and scared again. on plus side released 2 weeks ago, eating like a horse, accetis prety much gone just on one water tablet a day and getting some exercise.. mile or so a day walking. most importantly no drink since november

14 Replies
oldestnewest

An accurate diagnosis and prognosis is difficult to obtain during the early months of alcohol recovery. Alcoholic hepatitis and alcoholic fatty liver can both create symptoms that also occur with cirrhosis, and a clear picture of where you stand can't be determined until acute alcoholic disease has resolved.

"Minor" varices may be distressing to find, but certainly are better than bleeding varices that need immediate treatment.

Keep the faith you'll get better news in the months to come. Most X-Drinkers do remarkably well provided they can keep clean. Your one year re-evaluation will provide a more accurate picture of where you stand. The waiting is difficult, but tincture of time can often heal wounds.

Good appetite, resolving ascites, and energy for exercise are certainly optimistic. Keep getting better, and surprise them all!

5 likes
Reply

Loved that reply helped me out to thanks

Reply

Sorry about this but you ain't alone I thought I was going off me nut but now realized I ain't alone but keep off drink as me 3years nearly and I'm same which don't help you but you have helped me thankyou . Best wishes

Reply

I've felt awful the last couple of days, horrible depressed feeling of wanting to give up / hide away from everyone. not sleeping at all and feel vacant like I'm watching this happen to someone else. Does anyone have any suggestions for sleep, my doctor prescribed me couple of zoplicone at a low dose which work fantastic but I know they are not liver friendly and are a very short term prop up. I felt good the.last couple of weeks and thought was on the road to normality but all of a sudden all I want to do is hide and cry and have lost all my energy. DR and consultant are both really happy with the way my levels are improving but all I see is a old skelatan who is a burden on everyone.

Reply

Hey Chris I wish you were feeling better. I've read all your posts and really feel for your situation fist let me say great job on not drinking that's a huge step and must be celebrated some people can't kick the habit. Also good on you for exercising and getting as healthy as possible as that's the most important thing you can do at the moment. I'm also a guy who is a dad my kids are still very young now but I've also drank too much for too long. I have a questionable ultrasound and an appointment to see a specialist soon so I know your fear and the feeling of wanting to hide but we both have quit drinking now so we are doing the best for our family's now.

Take care your not alone

Boone

1 like
Reply

thank you for your message. I keep trying to look at the positives but at the moment I feel like giving up. Im looking at another night of no sleep and feeling like cr*p tomorrow with no idea what to do to feel better. I won't ever have another drink but I'm not sure if that's to little to late, one of the hardest things is I don't know how I should be feeling, is it normal to feel so bad, I have nothing to reference. I try and stay away from Google but spend so much time awake I can't help myself, then I open a ca of worms that just gives me more to worry about. I know nobody has the magic answers but this is all alien to me and I have no idea what to expect each day.

Reply

Oh Chris, the emotional rollercoaster coming out of hospital and not knowing exactly where you stand is par for the course. I distinctly recall a turning point at around 90 days recovery from my alcoholic steatohepatitis, & it took 6 months before I was truly walking back on the sunny side of the street.

The sleepless nights were hard at first, but I eventually learned to enjoy my little midnight meditations. I'd lie in bed and reminisce about my life. I never thought I'd be truly happy without alcohol again, so my future seemed bleak, but there is life after alcohol and it ain't all that bad.

Looking back (8 years), it all seems like a bad dream now; but I'm alive, happy & healthy and life is good! Hang in there, & this too shall pass!

1 like
Reply

Hey Chris how are you feeling today. I just wanted to let you know your not alone with your fear and worries I to am struggling with sleep and depression. I hope your feeling more positive today I'm thinking of you and your family hang in there.

Take care

Boone

Reply

hi all, I feeling ok, still very weak / not sleeping bit guess that's all to be expected. worried about what is roundthe corner but doing everything I can to get better, eating lots and well, trying to get out for a walk every day... it's going to be a long journey bout trying my best to be as positive as I can thanks so much all

chris

Reply

Hi Chris, be careful about the veins in the esophagus. My husband had bleeding varicis. He was banded several times. Watch for pain and or dark sticky stools. The bleeding can be life threatening if not caught. Good luck.

1 like
Reply

yeah thanks , my consultant has sat me down and explained everything to me

Reply

Hey Chris how have you been doing I hope all is well. Just wanted to check in hang in there .

Truly

Boone

Reply

Hi, been up and down. Good days getting more frequent but bad days are very bad. Been having a bit of confusion and forgetfulness lately although been ok for a few days. Hard thing is the emotion of it all, i don't know who to turn to at times and feel worthless. Sleeping not really much better but get the odd hour here and there. Hope your ok

Chris

Reply

Hey Chris I get the emotional part of it I'm really struggling with the guilt of my past drinking and what it has done to the future of my family. I have been struggling with doing the simplist of things because my mind wonders off into thoughts about my health. I find that it's best not to spend much time on the internet it only leads to panic. I've been filling my time when I can't sleep with lifting weights it had actually helped my sleep some. I'm really trying to focus on enjoying my time with my wife and kids now as you never know what tomorrow might bring. Your not alone in this journey.

Boone

Reply

You may also like...