Elevated ggt levels: Hi everyone, I'm a... - British Liver Trust

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Elevated ggt levels

Milkthistle profile image
5 Replies

Hi everyone,

I'm a newbie here - My GP has just told me I have changes in my liver as a result of abnormal GT enzymes in my blood - he says it could be anything from bile duct problems to liver cancer , but I'm really worried. I've having a ultrasound in 4-6 weeks (on the NHS), but in the meantime, does anyone have any advice on a healthy diet I could follow. I don't drink at all, so I'm guessing it must be down to a bad diet - I have a BMI of about 27, but it's all around my tummy (not good I know!)

Thanks in advance, Eve

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Milkthistle
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bantam12 profile image
bantam12

Don't worry until you know if there's anything to worry about ! My ggt along with alp and ast have been raised for the last 10 years, ggt up in the 100s, despite all the tests, scans and biopsy no cause has been found. You may have a problem but you may not, good luck.

Milkthistle profile image
Milkthistle in reply tobantam12

Ah, that's good to hear.

Thank you!

monicalynn profile image
monicalynn in reply tobantam12

hi my ggt my alp and my ast all were high and I had every scan possible with only one little stone barely showing up finally after 15 years.. some scans don't show all all the time and the biopsy was done but showed nothing. turned out I had a dna problem in the mitrochondrial gene that caused me a lot of autoimmune issues down there with the liver and bile ducts and it took almost 20 years of misdiagnosis to finally find the route of the problem. I had elevated number over 20 years that only rose up bit more finally in the past 2 years. so please stay cautious and in good health just in case and continue getting your numbers checked every year in case. wouldn't want to see anyone go through this after 20 years of nothing and misdianosis

bantam12 profile image
bantam12 in reply tomonicalynn

Interesting monicalynn, how did you come to have the DNA test ? I think organising anything like that would be slightly beyond my Gastro doc !

monicalynn profile image
monicalynn

it is hard to get in for dna testing I had to keep begging and finally when they got to the point where 8 different specialist couldn't figure it out and I was firing drs and complaining to ahs about the stupid way things were done then all my family dr was send in the req and my medical records since I got sick 2 years ago and after 4 months of sitting by the phone waiting I got in. my nephew has myeloid leukemia and he was sick for whilewith no drs figuring him out until his mother demanded dna testing for nerve and mitrochondrial and he had bad genes all through so his testing also helped pushed the drs into testing my family and guess what were all bad lol

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