Nodular regenerative hyperplasia - British Liver Trust

British Liver Trust

36,241 members17,905 posts

Nodular regenerative hyperplasia

ahmed77 profile image
2 Replies

Anyone with familier experience?

My brother (age 17) is suffering from NRH. Is it curable? How long does it take ?

Written by
ahmed77 profile image
ahmed77
To view profiles and participate in discussions please or .
2 Replies
Worriedmamabear profile image
Worriedmamabear

we are early in diagnosis, how is your brother now?

SummerDawn profile image
SummerDawn

Hi there - if you search this website, it's one of the very few you'll find several different personal experiences from people with NRH. I've just started a Facebook group & page as well, hoping to collectively come together to be able to discuss this. My husband was diagnosed in 2001 and had been fairly symptom-less until 2016, when he ended up receiving a side-by-side renal shunt to relieve pressure. We are anticipating it being a long term fix. Would love to chat more!

The public page (for general info) is:

facebook.com/Nodular-Regene...

The PRIVATE group (more intimate/detailed discussion, support, etc), is:

facebook.com/groups/2038203...

Feel free to pop me an email, too!

steenbargers@gmail.com

You may also like...

What are your symptoms of regenerative nodular hyperplasia and is it worth doing a CT scan?

were diagnonsed with RNH what you symptoms were and how it was eventually diagnosed (and whether...

Nodular Liver Surface

Has anyone had a scan that showed a nodular surface contour but it’s NOT cirrhosis? My CT scan...