My husband had a varices bleed in Dec 2015 & it was confirmed that he had ARLD & Cirrhosis & had to give up his job as a chef as an umbilical hernia developed ...making it dangerous for him to work in a kitchen. He claimed ESA but we were told the money was only virtual until the assessment ..DWP claimed he was fit to work after the assessment because he could lift an empty cardboard box moves his arms & legs etc. His virtual ESA was stopped & he was put on to jsa but again no actual money because as a teacher I work more than 24 hrs a week.
Fast forward to Jan 2017 ...umbilical hernia repaired, Feb 2017 was put back on ESA again no actual money in hand, & spent a night in observation ward as fluid had moved from his abdomen (ascities) to around his lung, chest drain planned 3 times but never happened.
March 2017 went into respiratory failure, first ever episode of HE, due to fluid on lung as initially thought to be pneumonia turns out it was ecoli...sepis...kidney failure... pneumothorax developed, so 2 chest drains & ventilated & sedated twice ...the 2nd time they didn't think he would wake up.
On Wednesday admitted to a&e with a severe case of HE ...flooded his parent bathroom & was found just staring at the sink where he had been sick watching the water run. Thankfully fluids & lactulose have sorted him out. The damage the ecoli caused has reversed all the good work over the last 18 months, it now means he has to eat high protein, high carb & high fat diet to stop his liver using his muscles for energy.
There is absolutely no way up can go to work in this condition (sods law he was getting ready to go back into work) as he is a health & safety risk
In terms of his virtual ESA what do I do ...it is becoming a struggle financially to cope
Do I get in touch with them & tell them his health is worse. I do t want him to have to go through another assessment as he was ill for 3 days afterwards in 2016 after they declared him fit to work