Worried mum: Hello, My daughter has... - British Liver Trust

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Worried mum

Redted2910 profile image
12 Replies

Hello,

My daughter has still no diagnosis of what is going on, back in late November to early December she was rush into hospital pancreatic emyzemes high and ALP/ALT raised, they put it down to possible pancreatitis, but now she is in hospital with Temp 38:5 and trace of bilirubin, vomiting and pain,.

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Redted2910 profile image
Redted2910
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12 Replies
freddie76 profile image
freddie76

You don't say how old your daughter is but you should make sure she is seen by a Hepatologist (specialist liver doctor)

What area are you in and which hospital?

Redted2910 profile image
Redted2910 in reply to freddie76

Thank you for your reply. My daughter is 21 and is currently at university in Plymouth and I live in Wales. My daughter is under a Hepatologist but they can't see what's going on but her blood works tells them different.

freddie76 profile image
freddie76 in reply to Redted2910

Well if the Hepatologist cant diagnose I don;t understand. What exactly are her symptoms,what has she been tested for and which enzymes are outside normal levels and what are the levels?

Just trying to help as we had problems initially with my husband pre

diagnosis

Redted2910 profile image
Redted2910 in reply to freddie76

Her symptoms are abdominal pain underneath her rib cage, that also is in her back and shoulder,plus vomiting. Her pancreatic emyzemes where 567, and all that we've been told is her ALP/ALT are raised.

freddie76 profile image
freddie76 in reply to Redted2910

I think it is about time for a second opinion which u r entitled to

Good luck

Dldtx profile image
Dldtx in reply to Redted2910

Sounds like gallbladder / stones, I had to have mine removed the pain was as similar to what your describing, gangrene had set in I was sick and in pain, they should see that with a ultrasound/MRI

susieanna profile image
susieanna

Agree; you must demand she is seen by a Hepatologist.

Redted2910 profile image
Redted2910 in reply to susieanna

Thank you for your reply. My daughter is 21 and is currently at university in Plymouth and I live in Wales. My daughter is under a Hepatologist but they can't see what's going on but her blood works tells them different.

Thinking of you and your daughter. It's such a roller coaster.

Redted2910 profile image
Redted2910 in reply to Paulineunderstand

Thank you for your kind words, it's so worrying as my daughter is only 21 and she's my baby even thou she would hate me saying that.

My daughter is under a Hepatologist but they can't see what's going on but her blood works tells them different.

susieanna profile image
susieanna

sounds very odd; maybe time for 2nd opinion as has been said??

Redted2910 profile image
Redted2910

Hi everyone, thank you for all your support. I've had an update on what's going on, they are thinking, that my daughters Gallbladder is going into Spasam apparently it's not very common as there is three different forms of this they call it "sphincter-of-oddi-dysfunction"

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