So I've never written on this page; have done on the MPN Voice ones but never needed to here before. My history is a little complicated;
October 2013 I was Dx with Liver Cirrhosis (14 tumours) & Portal Vein Thrombosis
February 2014 I was Dx with Myeloproliforative neoplasm - Polycynthymia Ruba Vera - (a rare Blood Cancer)
I have had a total of 28 varicies banded and in Easter developed another 4 tumours on my liver.
My liver function tests are pretty good, I am really besides the above in relatively good health; however after a recent MRI showing my Hepatology team in Kings have decided I need to have an assessment for Liver Transplant sooner rather than later; to be honest I never expected to hear this so soon; I thought that this was going to be at least 5-10 years off.....
So anyone have any advice? Dietary? Exercise?
(I don't drink, haven't since I was dx'd not because that's the cause, I just wanted to give myself the best chance I could at not needing a transplant....(didn't work), I don't smoke, used to be a social smoker, only when I drank so that put paid to that, and I am pretty fit, I actively enjoy the gym/fitness classes)
To say I am scared, rabbit in headlights, feel like I am in a water barrel about to go over the Niagara is an understatement!