I been diagnosed with cirrhosis

I been diagnosed with cirrhosis,my tests I think  ALT was over 800 but in two week they come down to 246. I am really scare. I feel ok apart be little bit weak and tired.Eyes and tongue is normal colour. I had problems with liver 6 years a go but all looks like gone. I lost my dad months a go and I had drink for 3-4 days. Normally I don't drink at all .  

20 Replies

  • sorry to hear that-how long have you known you've had cirrhosis and how was it diagnosed? Am presuming the liver issues are caused by alcohol? The fact the ALT came down so quickly looks like good news. First and foremost you need to stay away from alcohol although I understand why you went off the waggon. You need to get all the test available and post here. In the meantime-watch your diet -reduce salt amd maybe take a standard multivitamin if you're feeling low. Loads of advice on this forum.

  • I had eczema on hands for one year,creams and ointment.Sleeping in the gloves,working in the gloves.Dermatologist ask for blood test and patch test ( positive reaction on iron build in the body because of liver dysfunction )  I don't know how long I have cirrhosis ,but I been for ultrasound two years a go and they said I have little bit fatty liver but nothing what I should be worried. Two years a go we been pregnant 3 times,we lost all. My wife father was diagnose with cancer ( they treat him six months with painkillers and paracetamol) and months a go I went to see my parents ( Easter ) I spoke with dad make jokes. Two days later he didn't wake up. So lots of stress, me and my wife end up on antidepressants. Now is me. I don't know if my wife can taking anymore of sadness.

    Ok that's my story.

    I try stay positive and keep hope there is a chance to recover.I am exercise  every morning for 20 minutes on bike and than sit ups (100), cereals, benecol (lover the cholesterol), vitamins, fresh air. 

  • Hi,

    It's going to be ok. Cirrohsis is not the end of the line. I chose to look at it as part of the journey. One that hopefully can be managed.

    Do you have a  good specialist? If your cirrhosis is from Alcohol you must quit now to avoid an more damage.

    Getting plenty of rest, managing g energy levels, eating more plant based protein have all helped me.

    From now on (I assume) you will have 6 monthly ultrasounds, and blood work monitored. Keepin the look out for the nasties.. Varcies, acieties, HE ... These are serious complications from decompensated cirrhosis and need urgent medical attention.

    You are not alone....

    Good luck,

  • Thanks,just waiting for answers is horrible,I need wait for specialist two weeks.

  • You poor thing. That absolutely sucks my friend. It's agonising and the medical system is tricky to navigate at times. 

  • Hi

    Good advice. I have had/got the nasties. I had an endoscopy on Friday where l had 2 grade 2 and 2 grade 3 varies banded, on rifaximin to control the HE and ascities which is being controlled with directics which are slowly being reduced to save kidney damage. Quiet what's next l am not sure.

    Trust everyone else keeping well

    Best wishes

  • Hang in there. I'm so sorry that you're going through that. 

    Hopefully you are being assess for transplant and being well looked after by specialists, friends & family.

    All the best.


  • Many thanks l am seeing a transplant team soon with a view to going on a list      a bit apprehensive hoping it will be positive.

    Best wishes to all

  • You will also need an endoscopy and a colonoscopy to check for gastric varicies.

  • As someone else mentioned, the fact that your ALT has come back down is good news.  And I think you have realised that keeping away from alcohol seems to be the answer here. Sorry for your loss - losing your father is horrible. Let us know how you get on. The waiting is horrible but as your ALT is coming down and you feel ok, sounds like you're heading in the right direction. Take care x

  • Many thanks for your support I really appreciate. 

  • I forgot say they find diabetes and high cholesterol which can be connect to disease. 

  • Yes there's an established link between fatty liver and high cholesterol

  • I'm so sorry with all that you have been through, my thoughts are with you and your wife.  I have cirhossis after drink related liver failure on 2 occasions.  The reduction of your blood level is great news so your doing something right.  Living with cirhossis isn't great but I have a decent quality of life after quitting drink.  I live on my own so care for myself.  I get depressed about it but I just try and maintain my physical health as best I can, I have good days and bad days with physical health, ie, tiredness and just feeling yuck then there are days when I'm ok.  I had a bereavement last January which knocked me for 6 so I'm sorry about your dad.  Now you have been diagnosed you will be cared for under a hepatologist or gastroenterologist, and have further tests to see what the cirhossis is doing.  There is light at the end of the tunnel. I wasn't expected to survive the liver failures but I am here and I wish you lots of best wishes.


  • Good post jules

  • I have liver diease called portal hypertension I'm also scared I think mine has got a lot worse its a very rare diease been caused by medication I know how you feel I have got to go tomorrow for a heck up and dreading it so far had no treatment as they can't treat it had three years now.

  • Hi Bournemouth, have you been told you have cirrhosis?

    The reason I ask is that portal hypertension isn't a liver disease in its own right but a symptom of liver damage (cirrhosis) - it is caused when blood trying to get through the liver can't because of blockages due to the damage and therefore the blood backs up causing pressure to rise in the portal venous system (a.k.a. portal hypertension).


    Portal hypertension can go on to cause issues such as ascites, oedema, portal hypertensive gastropathy (damage to stomach lining), varices in the oesophagus and hepatic encephalopathy.

    In some cases to prevent the condition getting worse some patients are given beta-blockers such as propanolol or carvedilol.  Regular endoscopy exams are also required to check for varices since if they bleed the result can be catastrophic.

    Your medication may have triggered the 'rare liver disease' as it has been described to you but the portal hypertension is a side effect of that liver disease rather than an actual liver disease.

    My hubby has cirrhosis due to auto-immune liver disease/auto-immune hepatitis and it only came to light when portal hypertension caused veins in his oesophagus to burst - my hubby isn't on beta blockers but did have an aggressive 'banding' regime carried out by his consultant to tie off all varices and prevent future bleeds.  His portal hypertension also cause several aneurysms to form in his splenic artery and these had to be embolised to prevent any fatal bleed there too.

    Best wishes for your check up tomorrow.


  • Thanks for explaining it to me. I also have an automune problem too and it's causing heart and lung problems due to pressure. They think their is a blockage somewhere but can't as yet find it. They also checking me for wilsons diease as I am border line so they say. It's all very wearing as you are aware but I hate feeling ill and struggling everyday. All the best. Angela

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  • Just update: all is in green all results apart diabetes ( its slightly above normal but its coming down) .I am run everyday 3-4 km cut half what I eat before ,in the morning smoothie. Dont taking any tablets. Just waiting for CT of liver and more scans.I been diagnose 7 years a go with hepatitis C ,its gone .

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