This is the latest. Terry had 2 stomach drains ready for the CPET test. The guys doing the test said he managed to reach their target but I've no idea how. His feet & legs are so swollen that he can hardly bend his knees. He's been home since Wednesday & is pretty good at the moment. However I do know he's fed up of being in PJ's & slippers. I have managed to get some wide legged Trackie Bottoms (2 sizes larger than usual) but I'm struggling with footwear. I think if he could go for short walks in the fresh air it would be good for him. Anyone know any solutions to the footwear problem ?
Hope everyone is keeping as well as possible.
Thanks Mal.xx
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Great news that Terry got through the CPET test - hopefully that was the last hurdle before they'll go ahead and get him on the transplant list. Short walks will be ideal to help keep his spirits up and his heart and lungs healthy in the run up to transplant.
Hey, you are most welcome, was just on line when your message popped up and I just thought i'd have a look at what options are out there.
Found another site just now who do extra, extra wide and seem to have a more attractive range of styles plus videos on measuring the feet before ordering.
I can't post a picture but the people I work with who have extreme oedema in feet and legs get velcro fastening boots via their district nurses. I think they are what the NHS provide for people in plaster following a fracture.
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Hepatic encephalopathy reoccurrence 
Feeling a bit sad and down
How bad is my dad? Is there worse yet to come? Hospital not saying much 
Situation is not good
