HHT and Acregaly

Does any one suffer from Avm's pm the liver caused by HHT and also suffer from Acromegaly caused by MEN-1. Both are hereditary and genetic conditions. The Avm's clause heart failure and the only recommended treatment sessions to be a liver transplant which I at present reluctant to under g. Any advice would be welcomed.

[pear-shaped]

Dear Timpmiller,

I do not know about the condition but do know about transplant as my husband has had to undergo 2 in a space of a few months. If transplant is the only cure then you must discuss this in depth with the transplant coordinators. Often it is the case that a patient becomes too ill for transplant and in some instances - depending on blood group etc - patients die waiting. The transplant itself comes with many pros and cons again, you must be given a chance to discuss this with a liver coordinator.

Keep us updated,

Pear

[Hidden in reply to pear-shaped]

Thanks for the advice. Will keep you informed.