I have liver transplant 22 days ago, m... - British Liver Trust
I have liver transplant 22 days ago, may i know how could cope on immunospes medicine, FK 506' which is disturbing me alot. Guidness require
Hi Mamjad
First, congratulations on your liver transplant. I hope you have as much success as I have had since my operation in December 2011.
I too have been on FK506 (Tacrolimus) as one of the immuno suppression drugs since my operation, along with MMF and for the first month or so, a steroid and a couple of anti-viral tablets. Over time, the doses have been lowered in the light of regular blood test results. I now take 1.5 mg a day of Tacrolimus and as far as I am aware, have never had directly attributable reactions to it.
I am not sure what you are looking for other than some reassurance that the negative effects of the drugs should be minimal and that if you are having bad reactions, you should be alerting your medical team who may want to consider alternatives.
Best wishes
Mike
Dear Mike, Sounds great to hear from you, i am glad to know about your good health after the liver transplant. I appreciat your kindness, and the time give to my request, well, now i am quite comfortable, and having good apitite, good walk, mean shareable imporvements, its my 25th day of the surgery now, and i hope that i will be dischage with in couple of days more. Dear Mike, i wish some more time from you, i feel tired just after the little walk, have less sleep and using sleeping pills, which i dont like to use every day, might it is because i m far away from my family. Dear Mike, i also want to know that how your are caring yourself just after transplant. May i know too, from where you have your transplant. Again thanks alot for your great time. Loking forward. Best regards
I pretty much agree with mike, I had my transplant 11 wks ago so I'm still on the majority of tabs, I'm not sure what's up as you don't say but my experience with the tabs till they settled down I had night sweats I shaked a lot and it was very noticible and I continued to lose weight as I had no appetite but that returned and the shakes stopped once I came off the steroids as did the night sweats, but if your unsure just tell your consultant when you see them which I'm gonna guess is every wk, which hospital were you in?
Dear both
From what I remember about 3 weeks and 11 weeks post surgery, there is still a bit of weakness etc. but it does go as you regain strength and confidence. I think some of this depends on how ill you were before the transplant. In some respects, I was very lucky in that I had a small tumour but no symptoms. I was recovering, therefore from the operation rather than a liver disease.
While you never forget that you are a transplantee, there are some days when it does not impact on you at all, apart from when you think to yourself "Tablets" or "Aren't I lucky".
I had my transplant at St James's in Leeds and the staff were brilliant.
I look forward to hearing more from you as you continue your recovery.
Mike
Hi all, I hope you don't mind me asking a question. To you guys, my husband is having a transplant operation, nxt month, basically one of our friends is giving half of his liver to my husband, who has auto immune hepatitis, have any of you guys have received half of a liver, and is the success rate good, from a live donor???
A friend of mine had a live donor transplant and she is doing wonderfully! Congratulations and safe surgery!
Congratulation on successful transplant .with passage of time this immunosupressant dose becomes low and u will be easy by immunosuppressant so handle it with patience and thank God for ur new life.
