Just started on Terrosa daily injections (day 7 of 2year course) and have just received text from Lloyds Clinical, telling me that the manufacturers have run out of supplies and so they will not be able to make my next meds delivery. Lloyds are coordinating with clinic on what options might be.
Anyone else had this? And what other options are most likely?
Hi I've only just joined here, and I have been given Terrosa to start the 2 year treatment. the nurse is coming next week to show me how to start the injections. I've been sent a months supply but am concerned now if they are/have run out? I'm in Cardiff, where are you in the UK?
North east Scotland. UK suppliers are somewhere down south I think so I imagine it may be a nationwide shortage? I’m waiting to hear from support nurse and/or clinic, will let you know if I get an update from them. Don’t panic!
Ask whoever prescribed this aa there may be another generic version. This is effectively a generic version of teriparatide. Maybe also talk to Royal osteoporosis society. Lloyds Clinical have new owners since I used them but frankly they were not great.
Personally I'd get a second opinion from another pharmacy. I live in Surrey and Lloyds have disappeared from the area, totally useless.
I got the same message yesterday in Northern Ireland. Not good news. Will be speaking to my medical practice as directed on the message. Hoping that an alternative can be secured as I am just 6 months into the treatment regime.
Lloyds Clinical have actually been really good so far, very organised and pleasant staff. I think that the problem is with manufacturers, not Lloyds. Don’t know if it’s just within UK or more widespread.
My support nurse texted me first thing this morning, telling me continue with current supplies, and she’ll ‘phone later today. Hopefully, there will be some sort of back-up plan by then! 🤞
Yes me, 2 year treatment finishing in May. Need delivery next week and told atthe moment none avail. Also in Scotland. Contacting cosultant on Monday.
I've heard of others in that situation, Talullabel, which seems madness. The manufacturers must have known that they were running out of supplies, so why didn't they tell the providers in time, so that they could prioritise people like yourself, letting them complete as full a course as possible, rather than start newbies like myself, who wouldn't be on it long enough (1 month) to get any benefit?
I told nurse that I still had three weeks left, so she might as well wait until she knows what's happening before she gets back to me. Will post again if I hear anything.
Good luck everyone xx
Thank you Blackcat99. I will be speaking to my bone clinic tomorrow. Called Lloyds twice last week on Monday and laterly on Friday. Hoping for a positive from bone clinic. Xx
medical practice have told me that a new alternative supply of teriparatide has been secured and that product will soon be available for distribution.
Any idea who the new supplier is? I note you're in NI. We're in NW England - hopefully we'll be covered by the distribution area.
I haven’t got the letter yet so unable to confirm but am under the impression that Lloyds will continue to be the distributor used for the new product.
Thanks - let's hope Lloyds get back on track.
Thanks for info, First-Call - let’s hope it happens quickly, for all the UK, and beyond!
Despite the number of people who seem to have had issues with Lloyds in the past, I’m not sure that they are to blame for the current problem The message which I received said -
“The manufacturer, Gedeon Richter (UK) Ltd, has notified us of a significant supply shortage, which unfortunately means that your next scheduled delivery will be impacted as we currently do not have sufficient stock available. We want to reassure you that we have already informed your hospital clinical team and are working closely …. Etc”
I believe that Gedeón Richter are based in Budapest?
Just received a letter from Lloyds, telling me that, with Terrosa unavailable, the hospital has decided to change me on to Teva, which is a biosimilar, produced, I think, in Eire. Presume it must be fairly new, as I have been able to find very little about it online. Have others heard what they may be switched onto? - and does anyone know much about Teva?
no to prolia
Causes of Osteoporosis 
Spondylolisthesis- no information from gp
No more meds
NHS Bone Scan - how often?
