New treatment

[MWZ3]

New study and possible treatment in Australia:

uwa.edu.au/news/Article/202...

[HealthELiving]

It seems to me that women's health (bone and breast) R&D lag behind more urgent concerns like Viagra. While we are still stuck having breasts radiated and squished, there are other methods with better accuracy but the insurance field and medical seem to wish to withhold advancements. (a bit of a rant here...) Lets hope that this discovery becomes widely accepted and developed for better care. It should start with our doctors to help us, but instead, it seems I need to fight and beg to get a CTX and P1NP test for a baseline (still waiting...). Two years between DEXA scans is too long when trying to monitor treatment.

Thank you for sharing this great information.

[Jemi7266 in reply to HealthELiving]

I agree, R&D for women’s health continues to lag compared to men’s health.

I’m so sorry you have to wait so long for labs. I’m in the USA and get annual DEXA, plus quarterly CTX, P1NP, VitD3, calcium and other labs.

These test are a must before and during the treatment of osteoporosis .

[HealthELiving in reply to Jemi7266]

I agree. Does your PCP order those tests for you? Mine insisted I wait until the next Wellness annual exam and 2 years for a Dexa scan - that is not the way to manage health and know you are successful or need to adjust - we'd never run a business like that.

[Jemi7266 in reply to HealthELiving]

Knowing that I had several risks factors for osteoporosis, when I was 50, I requested a DEXA from my PCP @ Kaiser USA.

The PCP denied my multiple requests because he insisted that I was too young and healthy. Well, at the age of 59 I fractured both my feet and that’s when finally ordered a DEXA and labs. It’s was obviously too late. I was diagnosed with severa osteoporosis.

The following year, I changed insurance and since then have been treating with an endocrinologist.

I get an annual DEXA, every March & quarterly labs. My insurance approves the annual DEXA & frequent labs because it’s the only way for a physician to know if the treatment is working.

The first 2 yrs (2016-2018) I used Forteo and had great success. I then used Prolia for 5 yrs. My most recent DEXA, March 2022, showed that once again my density is declining. My endocrinologist recommended Reclast, but I decided against it because I’m afraid of side effects that I might suffer being that it’s a once a year injection. Instead, I chose to use Evenity, which I started in June 2023. So far, the only side effect I got with Evenity is a headache that lasted about 1 day, but that was only on the first 3 months (June - Aug) of injections. In September I did not have any notable side effects.

I will have labs sometime soon and my DEXA in March 2024.

I hope this helps.

Best wishes & take care

[HealthELiving in reply to Jemi7266]

It is sad that we have to be our own advocates in an uphill battle with pharma, insurance and medical. Sounds like you are doing what you can to win - I wish you the very best!

[Jemi7266 in reply to HealthELiving]

Thank you

[MWZ3 in reply to Jemi7266]

Do you know your actual tscores from before to now? What was your worst score? Was one much worse than another?

[josephinius1 in reply to Jemi7266]

Does that not seem like malpractice? Denying someone screening until the need is obvious?

I hope Evenity works for you. I was not screened either, too young, but osteoporosis wasn't on MY radar either, so I didn't ask, even though I broke my wrist at 58. After proving vertebral fractures I was able to see an endocrinologist, who prescribed Evenity, but my insurance denied it. I have doubts that anything will help me enough to significantly reduce fracture risk, and I'm getting to where I feel this is truly a disabling condition. I don't know if catching it earlier would have made a huge difference, but it's annoying to think "society" or "science" or whoever thinks my productivity and quality of life were not worth trying to preserve. I get that there's a point where there really is no point, but while I'm still working, theoretically contributing...you'd just think at least asking questions about family history would be on the care provider's to-do list.

[1ChLoE]

Looks very interesting, let’s hope it is developed quickly and can help, with osteoporosis. Thanks for sharing .

[MayGodBlessYou]

we always are hopeful about new offerings. this just looks like more anti-resorptive though.