Getting us through the winter months 💪

Hello everyone!

Some of us have been feeling a bit "under the weather" and we thought you might have experienced the same in the past few weeks.

We found an article on the NHS site that includes a really nice list of tips to get through the winter. So we thought it could be helpful to you as well: nhs.uk/conditions/stress-an...

One of the crucial things listed there is to talk to others about how you are feeling and it reminded us of a little video our MarketingHU produced last week for the Time to Talk awareness day

youtu.be/rq5MmtYij3w(Not working as expected?)

What is your go-to strategy to cope with winter?

At the office, some of us are trying to get as active as possible to get some feel-good endorphins, by either going to the gym or going for a brisk walk at lunch.

[Newdawn]

Thanks Laura. It’s saying ‘page not found’ on your link so need to go to the NHS website from there.

Newdawn

[Hidden in reply to Newdawn]

Thanks Newdawn !

I have updated the link so you should be able to see the list now

[healthyjoel]

I've been waking up at 430 and running/gym/running and feeling good for it!

[Hidden in reply to healthyjoel]

Great to hear Joel, an early start but worth it if its making you feel good and energised for the rest of the day! 💪

[healthyjoel in reply to Hidden]

You bet you A...vatar it's making me feel good!

[secrets22 in reply to healthyjoel]

Well done you Joel,i am afraid I dont have your commitment,especially as the weather becomes increasingly depressing,although I do still spend a lot of time working in the garden,and that does give me a lift.

[Konagirl60]

Going for a walk on a sunny day IF I’ve slept well the night before.

I used to be a lap swimmer but my neuropathy makes it difficult.

[foxglove in reply to Konagirl60]

Do you still swim? Even if not laps. If so would you tell me if you've found any way of helping the neuropathy pain? Thanks

[Konagirl60 in reply to foxglove]

I can’t swim laps anymore. The rectal nerves were compressed for too long. I had the rectal nerves released 3.5 years too late so the nerve injury is permanent. My sympathetic nervous system was completely overloaded. It’s not phantom pain.

I can snorkel gently and swim but nothing as full on as laps BECAUSE my meds make me too tired AND too much activity agitates the pelvic floor. I walk a long way BUT only if I’ve slept well.

Too much moving, climbing stairs, sitting , lifting grocery bags or bending over to lift items off of the floor, pushing a vacuum cleaner,etc, aggravate the nerve because the levator ani muscles spasm and the pudendal nerve is adjacent to or lies near these pelvic muscles.

I use Nortriptyline ( morning, afternoon and bedtime ), Hydroxizine HCL ( for breakthrough pain on active days in the afternoon) and always at bedtime, 12.5% Compounded Ketamine 12.5% Saline nasal spray for breakthrough pain on active days, AND AT BEDTIME I use a full 7.5mg. Zopiclone sleeping pill, Compounded 10mg Valium 2% Lidocaine vaginal suppositories, and one 0.1mg. Clonodine pill. I just started the Clonodine eight nights ago. I feel my anus and rectum trying to relax.

I meditate regularly to calm my Sympathetic nervous system...I do it in quiet AND when the neuralgia and allodynia are bad, I meditate with spiritual peaceful music on my I - Pad. Music is my best distraction from pain. It resonates with my being.

[foxglove in reply to Konagirl60]

Thanks for reply, sounds like you have a busy time trying to get well

[Konagirl60 in reply to foxglove]

Being disabled IS a full time 24/7 job!

[foxglove in reply to Konagirl60]

Agree

[Hidden in reply to Konagirl60]

Fingers crossed for lots more sunny days and restful sleeps Konagirl60

[Konagirl60 in reply to Hidden]

Thank you....I’ve suffered for years...it’s been quite the journey.

Everything could have been so much better if the doctors had treated me with respect and listened to me. They used their ‘ radar’ instead and thought it was all emotional....what nonsense.

[lupus-support1]

1, Flu vaccine.

2. Pneumovax for those with autoimmune, heart, lung etc conditions.

[Hidden]

Hi Laura, I just try to eat healthy food and a pan of homemade broth and dumplings to warm me up as I find it hard in winter keeping warm due to my cervical myelopathy, also I have just been told that I can only get my flu jab after all the people over 60 😵 I thought people who have poor immune system through I'll health would be priority doesn't seem saw at our DRS surgery x

[C_F28]

I know it was a year ago but it was helpful to me