Hi all I hope you are all taking things easy in this cold wind, just a quick blog to bring things up to speed.
After my bi-lateral lung transplant on 29/11/12 and being at deaths door a couple of times I recovered and was discharged on 17/01/13. I was 22kg lighter than when i went in but had a new pair of lungs YAY!!
The following monday 21/01/13 was my clinic appointment to check bloods have an x-ray etc as soon as they saw and heard me they had me on oxygen and prepped for a bronchoscopy! The infection they thought had gone was back and holding on to where my tubes were healing so I was re-admitted for a 2 week course of two types of antibiotics one by IV.
I am able to come home for a few hours today and I will be discharged again on Monday and hopefully home for longer than last time!
For all of you out there on the transplant list or deciding whether its worth going for it I say this to you - dont give up hope - it is worth it - it will change your quality of life. I had complications that not many transplant patients have so my journey has been a hard one and i still know I made the right decision. I take around 28 tablets a day which was a little daunting at first but a few weeks in and I can do them up without looking at the book now.
I hope this blog helps even just one of you out there as much as it helps me to write it.
Feel free to ask me any questions by message or comment,
Thanks for listening