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Can anyone help

Pugnala profile image
12 Replies

Can anyone on here please help,I have copd which I’m told by my doctor it’s not severe also have the start of heart failure but I am just constantly getting infection I’m on steroids and antibiotics yet again I can’t even walk round kitchen without struggling to breath I feel terrible I’ve only been of steroids over Xmas it’s really getting me down now and don’t seem to get any answers to why this happens all the time

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Pugnala
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12 Replies
MELNEL profile image
MELNEL

Hello, 💐 I can understand that you are upset about how you feeling. When taking steroids your immune system is extremely low, or better you have none. Special if you stop and start again. People with lung problems suffering longer with infections and it takes longer to heal. I know it is very difficult to have not much air to breathe, but you should try to have a bit fresh air, keep yourself warm. Eat healthy with lots of vitamins, chicken and fish and salads. And fruit salads, I always eat avocado to help the liver recover when taking steroids, it's really important that you eat healthy.

To boost your immune system, even buy Actimel or yacult. Do some breathing exercises, have a look at Yoga there are some good tips to relax and breath better.

As well speak to your GP, you need to talk to them, about your problems. Ask for pulmonary rehabilitation, or get in touch with the nurses on this forum, they can be very helpful, to try to support you. I wish you well, hope that you will feel better again, take it easy 🌹🕯️🌹

Pugnala profile image
Pugnala in reply to MELNEL

Morning thanku very much for replying and your advice it’s much appreciated,I will take your advice on board as I will try anything,the pain I can deal with it’s the being unable to breath and being unable to even take my son to school the infections are just continuous I am going to speak to my doctor today as I can’t continue this way xx

Ergendl profile image
Ergendl in reply to Pugnala

Good luck with your doctor. Hope they are able to help. Do let us know how you get on.

Pugnala profile image
Pugnala in reply to Ergendl

Ohhh what a surprise can not even get a phone appointment with the doctors really struggling to breath am just having to sit as can not do the simplest of things hopefully I might get a call from the doctors but I can’t leave it just don’t know what else to do

stamford1234 profile image
stamford1234 in reply to Pugnala

Have you got inhalers?

Pugnala profile image
Pugnala in reply to stamford1234

Hi yeah I have inhalers I’m using my blue one continuous but as soon as I move to try do something I struggle to breath it’s kinda scary

stamford1234 profile image
stamford1234 in reply to Pugnala

Maybe the steroids (and I guess antibiotics) didn't shift the infection and possibly you need more. Did you get a Dr Appointment?

Pugnala profile image
Pugnala in reply to stamford1234

I’ve been on n of steroids for months and antibiotics I’m ok for 2 weeks n then starts again try have all ready said I shudnt be having this many steroids but just keep giving me more,every time I get I’ll its worse it is starting to get me down now as I’m a mum n need to do stuff with my kids I’m just waiting on the doctors ringing me

MELNEL profile image
MELNEL in reply to Pugnala

Honey if you struggle is so extreme and you can't get an appointment, than go to hospital, It sounds like the steroids don't help you anymore. I believe this has to be addressed quickly, I mean you have kids if there are little they can't help you when something happened to you, so please don't wait this long to get help. 🌹

Pugnala profile image
Pugnala in reply to MELNEL

Thanku for your concern,doctors have rung me and she’s saying upon reading a letter from the hospital I need to be put on stronger heart tablets and up again in time until I get to the stage what I need to be on and also with me having copd and catching every bug going that don’t help but it’s more the heart failure that’s affecting me so hopefully in time when my treatment is at the right level I will start to feel a bit better fingers crossed 🤞 but thanku again it helps being able to chat n get advice xx

MELNEL profile image
MELNEL in reply to Pugnala

Hope you can stop talking the steroids? And do you know what you oxygen level is? It's not the same when you are at the phone with your doctor and not have a face to face consultation, to check all your functions.

But hey, hope you getting better. 🍀

Pugnala profile image
Pugnala in reply to MELNEL

My finger oxygen level is fine it goes from 90 to 94 my blood pressure is really low though

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