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Dysfunctional breathing

17 Replies

So after all my tests and diagnosing me with constrictive bronchiolitis that isn’t progressing caused by having chronic asthma as a young child the brompton have finally told me I may have something called dysfunctional breathing as my lung function is unchanged and I don’t react to nebulisers and have sent me to a physio to train me how to breath again, anyone else have experience with this, my symptoms are tight chest, really bad fatigue persistent wheeze that feels like I’m breathing through a straw

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17 Replies
Roessner541 profile image
Roessner541

No but felt like I have forgotten how to breathe at times, I really have to concentrate.

Ergendl profile image
Ergendl

Not in the way you have, but when I went to Pulmonary Rehab I discovered I was hyperventilating on exertion and had to relearn how to breathe when making an effort. That's why I run a singing for lung health group now.

in reply to Ergendl

Yeah I read about it and my doc explained but you got hyperventilation syndrome and dysfunctional breathing usually the same thing but there’s different breathing patterns, don’t feel like I was breathing any different then before it’s like it just became difficult but well see how it all pans out a

sassy59 profile image
sassy59

Not heard of that Ricky but just want to wish you well. The Brompton is a great hospital and you’re in good hands. Xxxxx

MarieW-F profile image
MarieW-F

I went to a respiratory physio who taught me how to breathe again (like a baby). I was hyperventilating and using only the top third of my lungs. Helped massively.

in reply to MarieW-F

What sort of symptoms did you experience from this type of breathing?

MarieW-F profile image
MarieW-F in reply to

I was getting headaches (not transferring co2 as efficiently as I could), breathlessness, air hunger (taking deep breaths every so often).

Don’t get me wrong I still get very breathless but I no longer tend to experience those symptoms described above.

lKeith profile image
lKeith

Rickybenfield1998

Hi, I've been to the Brompton hospital and they tend to do testing fairly deeply and thoroughly. You may like to try "Power breath" a gadget available from Amazon for about £15.00 which will help to strengthen your breathing methods. It's adjustable to help you build up. I have some of the symptoms you mention but I do find nebulisers work for me. ( I take 4No sessions a day using Salbutamol, available on prescription only) I do feel continually tired & can drop off without notice, I wheeze especially in the mornings but that seems to clear once I've gotten rid of my mucus.

I hoe your new training helps but you are not alone on this site.

IKeith

in reply to lKeith

Already bought this I do use it and have had improvement in my lung capacity but this may be due to swimming and jogging as well, cheers

shadow4me profile image
shadow4me in reply to lKeith

You are lucky we are not aloud the meds for a nebuliser until we are on pallative care although i find that when i have been on one its more affective than the inhaler x

knitter profile image
knitter

I used to breathe just using the top of my lungs too.....and reverse breathing, my stomach went in when I breathed in and out when I breathed out.

I had to learn to gentle belly breathe with relaxed shoulders and diaphragm.....belly out when I breathed in.....and using gentle nose breathing only to prevent hyperventilating.

Try putting one hand on your middle, one on your upper chest....the lower hand should move out when you gentle belly breathe in, not the top hand .

Meditation and relaxation have helped me with tense breathing too.

I find if I do deep big breaths through my mouth I can bring on the start of an asthma attack...I try and nose breathe at all times, but I can catch myself mouth breathing if I am not careful, and then hyperventilating and panicking .

shadow4me profile image
shadow4me in reply to knitter

That is what i also do reverse breathing i also breath heavy and hard with any activity which makes me hyperventilate its horrid x

shadow4me profile image
shadow4me

My specialist referred me to physio for the same reason when i saw them they did nothing not even any breathing exercises i came home with some leaflets on breathing exercises and that was it lol my symptoms are excactly like yours even to the straws I saw a different specialist today who said i may have Asthma with my COPD ?and he is ringing me with a appointment to see the consultant the thing that baffles me is i was treated for years for Asthma so why would it go when COPD set in I hope you find a answer x

in reply to shadow4me

I guess when you gave an existing lung problem like us with reduced lung function they always look at the obvious it’s taken 7 months to refer me to a physio and jump to the conclusion I’m breathing very wrongly, yeah the physio I saw didn’t show me loads just gave me a piece of paper with some exercises as well aha

daniellegagne22 profile image
daniellegagne22

Hi,ricky did theu ever do a lung biopsy on u?

in reply to daniellegagne22

Nah they didn’t, only chest Ct and x rays

Ergendl profile image
Ergendl

Singing exercises should help with reverse breathing, or exercises for diaphragmatic breathing.

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