Where to turn?!

[Bobbi6]

Three years now trying to find out why I’m not improving. Lung dr says it’s my heart. Heart Dr says it’s my lungs. Same game for three long years. I’m tired of it. Pft tests show I’m no better/no worse. My heart Dr ordered a right heart catherization for March 7. Wish me luck.

[Hidden]

Lung doctors heart doctors not quite grasped concept of joined up thinking to better patients NOR to the pitty really.

Anyway there is test AND it’s by no means definitive BUT if you lay flat and get out of breath THAT could left or right heart failular.

Lots don’t know is one condition can be walking round with unaware off.

Hope ya catherization go’s ok and hearts ok

[Bobbi6 in reply to Hidden]

Thanks for your response.

[Hidden]

Good luck Bobbi 🍀🍀🍀 it was my Dad’s birthday I am sure it is a good day!!

Take care xx

Fran

[Bobbi6 in reply to Hidden]

Awe, yes must be a good sign then. Thank you!

[Carnival567]

I entirely sympathise, having had the same responses. I had a RHC last November when they discovered all sorts of things, some good some not so good, but at least it has given them a PLAN! Always good to get that far. The actual procedure was fine with no problems. I agree with Jeff though, joined up thinking isn't always an NHS strong point, so you have to keep your eye on what is going on. Good luck xxx

[Bobbi6 in reply to Carnival567]

My last RHC showed I have PH. But my dr said it went away. An echo says it’s there just mild. Yes looking forward to seeing what this test says.

[Carnival567]

Yes they confirmed PH with me too, not that it was a surprise. Still here though and having breakfast at local Garden Centre xx

[BSA-3 in reply to Carnival567]

Excuse me for being a bit daft,lol, but what is " PH "? I have PH, but mine's a liver thing- Portal Hypertension.

[Carnival567 in reply to BSA-3]

I was equally confused then! I don't know what effect portal hypertension has, but I don't suppose it's any fun. Hope you are feeling ok this bright sunny freezing cold morning. All the best xx

[BSA-3 in reply to Carnival567]

Hi. Po.H is not specifically painful as far as I'm aware personally,unless there's something mixed in with everything else that hurts, lol. It causes veins to swell up in the oesophagus, stomach and below.If the veins burst it can be life-threatening. That's as far as I understand it anyway, not being a doctor. I'm Ok, thanks for asking. I hope you're as well as can be, and all the best to you too. Take care.

[Bobbi6 in reply to BSA-3]

Pulmonary hypertension is what ph is for me. I never heard of yours.

[BSA-3 in reply to Bobbi6]

Portal Hypertension is a complication of cirrhosis of the liver. Pulmonary hypertension, I think, is part of hepato- pulmonary syndrome, also a complication of cirrhosis. I tried to explain as best I could in my response to HappyJo above. I've got,( for my sins. ) both cirrhosis and severe COPD. Thus, when I was reading posts on BLF and I saw PH mentioned, it caught my eye. I am not a doctor; I can only go on the little I've been told and obviously I'm keen to learn more about anything else that I may or may not encounter. Please correct anything I've got wrong.

[BSA-3]

Thanks Jo. That is what I arrived at after a bit of thought,lol. It makes a lot of sense because if blood can't get into the liver via the portal vein, and backs up or clots,- well, I suppose that's what happens with the pulmonary vein and artery? Thanks for replying.

[sibkev]

its not that bad i had one doc said he was the best i said tell me you are gonna put cafata in he said look a screen its by ya hart never felt a thing a small twing at point of entry on way out was all brill doc

[Izb1]

Good luck bobbi6 , hope all goes well for you and they can find the right treatment. Irene x

[Bobbi6 in reply to Izb1]

Thanks Irene

[Bobbi6]

Thank you for all that input. I can’t have a left heart cath bc I have two mechanical valves. You’ve given me much to think about happy jo.

[robert1957]

hello bobbi6

please research magnesium deficiency and symptoms of magnesium deficiency also research benefits of vitamin d3 k2 Mk 7 goodluck