British Lung Foundation
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1st timer and terrified

1st timer and terrified

Hi I'm Cheryl I'm 58 just had endoscopy with biopsy,then had CT scan on abdomen and pelvis,hospital Dr called this morning to say I now have to have pet scan Asap as I have a tumour on my lung,instead of asking her about it I just ok thank you good bye,now it''' sinking in my mind is in overdrive,if anyone out there can advice me or if anyone going through similarI would love to hear from you thanks xx

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Hello chez59 .

I can only imagine how very worried you must feel. You must have been in shock. But please let me just say this. They need to have a closer look at it before any conclusions can be made. They may even need to do further tests. Do you have someone who can go with you when you see the doctor? Sometimes in our panic we get tongue tied. I know I do sometimes.

Please let us know how it goes. I am thinking of you.

Best wishes.

Cas xx 🌹

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Hi sorry to read about your news dx LIKE cas as said you need someone with clear mind to go with you in order to ask questions as can be all tad much.

A lot of tumour can be removed so i would not panic just yet thats why its inportant to have someone with you to ask akward questions treatment options.

Good news is as you had endoscopy lungs must be in good order to tolarate camera.

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Oh dear! That is definitely not great news ... I can just imagine where your mind is going. Try not to let it go to any dark, weird place! First, I think you were in shock at hearing that news. So get a list of questions ready for your specialist. Ask to see the pet scan and get him/her to explain what the scan is about. Is it cureable and how? Counselling can help if you find a good therapist. In the meantime, we will offer you loads of love and encouragement just reach out and let us know how we can do that! All the best to you Cheryl.

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It is important that you try to distract yourself. Give your mind a rest. Make sure you still have plenty of exercise. Try to eat good small meals. 6 insteaed of 4. You are building your self up now for the coming battles ahead. You need to push the nagging thoughts away and bring in positive ones. I am a firm believer in reading a good book to take your mind off things.

I am sad you are facing this. We are hear to support you. Look after you.

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What great, uplifting replies you’ve had Cheryl and l hope they have helped. This is a truly caring, supportive site and l just want to say, welcome. Xxxx

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I have been where you are now, a year ago.

A pet scan is very similar similar to a ct scan, the only difference is you are given an injection that contains a very short lived trace of radioactive isotope. An hour of resting in a reclining chair then the scan that takes 20/30 mins, you do not need to hold your breath at any stage. This scan is to see how active the nodule is.

This was followed up by another ct scan 6 months latter, and my nodules had shrunk and calcified, but they also spotted two new ones in a different area. I was put on "watch and wait". Three months later another ct scan revealed no change to those either and perhaps even shrunk.

I am due a follow up ct scan this coming February.

I freaked out at first just like you, worrying can drag you down and affect your immune system, making you ill. Neither will it make any difference to any outcome. They are just being cautious, from what I have been told, most cases do not develop into full blown cancer. They are being cautious because if (a big if ) it is cancerous the eirlier it is treated the better the outcome.

Easy to say and hard to do. but just get on with enjoying your life, acceptance of the situation is a big help too. Keep your mind busy with other, good, thoughts.

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Dear Cheryl

I had those scans too. It is ok. I was told to take 30 mg of prednisone at midnight and 30mg at 6 am because they didn’t know if I would allergic to the colouring product they injected. I didn’t have any reaction whatsoever.

I think it was iodine.

Anyway you just go through the motions, everybody was kind and hospitals are better equipped these days, so you will get a prompt answer and discuss treatment with the consultant soon.

I keep my fingers crossed for you.

Let us know how you are getting on.

Fran x

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Hello Cheryl, and welcome to the group. I hope that you've gained some comfort from the replies you've had up to now. I can only imagine how you must be feeling, but sincerely hope that all goes well for you. 🤞🌹 XXX

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I'm sorry you have had to go through all this, I know just what you must be feeling, but I am glad that your doctors are being proactive it could be something or nothing as my Nan used to say. If it's something the sooner it's dealt with the better, if it's nothing then the sooner you know the less the worry. I hope all goes well and that you are reassured. All the best xxx

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Morning to you all,thanks so much for all your comments it sure does help to get things into perspective,I've never written on any sites for anything but I am so glad I did on this one.My kids have all said they will come to appointments with me lol so they can know what's happening.I really am so grateful for all your lovely messages and I will keep you updated,I hope your all having a good day take care xxx

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Hello Cheryl, Welcome to a very Friendly & supportive Group.

My pet Scan showed a Nodule, left lung, as I was having my 4 day assessment for Lung Transplant which did not allow me to go on the list at that time, like you Hun I was so Worried, I didn't know what to ask, Luckily My Hubby was with me and the Nurses are Brilliant and explained that it May not become a " Tumour" they did put my mind at rest, I had to wait 3 months to have another Pet Scan (Radioactive) to declare that it had not Grown, therefore they were happy to put me on the Transplant List, I go every 3 months for a "Tracking" Appointment and Normal X rays show I'm OK and remain on the list. I have Learnt to write all my questions down before I go for appointments, even with my local GP. You will be strong and you are in the best hands with our NHS. Take care Hun. XXX Carolina XXX

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Hi Carolina you are so strong,I'm glad that you didn't have to come off waiting list and hope you get your transplant soon.I will definitely be writing down all my questions down,my mind just seemed to go blank,I do think the not knowing is worse,but I've got to be strong for my family take care Carolina xxx

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Hi Cheryl,

Glad I could help a little & Thank you for your Kind Words. We are all on here with various Levels of Organ damage, everyone takes time to Listen and with calming words for those of us at various times in our Life need to Hear, and be inspired. Cheryl, I do hope you are more restful now. Please let us know how you get along with the Doctor, we will all be there, Holding your hand. XXX Carolina XXX

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