Hi everyone. So glad to find this wonderful site 😊 Was diagnosed with Emphysema on Friday due to this Deficiency. Apparently it is inherited from my parents and has caused my condition. No cigarettes to give up 😉😉 but totally freaked out when reading some sites which gave me less than 5 years to live as I am stage two. Hard to believe I would be dead in 2 to 4 when I don't feel that unwell. Of course the Specialist will not give my a life expectancy so I believed those Google sites and had a terrible weekend. I have horses and dogs who need me to stay alive for at least another twenty years ha ha.
Reading your site has given me back my mojo and I am feeling brighter again ... thank you.
Is there anyone out there who has this Alpha 1 thing. In Australia there in not replacement therapy as our medical mafia have not accepted the effectiveness of such treatment. In the USA they have programmes for this. Not sure about the UK. Will try to get on a research programme here which may allow me access to treatment otherwise there is no way for my body to stop the destruction of my lunges and possibly liver. Gloomy outlook so would love to hear from other Alpha 1 people with Emphysema.
Love your site 💗💗