Hi good people! As I grow older I seem to be joining more and more HealthUnlocked Communities but normally as someone who has a condition.
I have joined the BLF Community for something different though - how to help a relative with IPF, desperately ill in hospital. My 75 year old recently widowed sister who lives in France, was told yesterday that she has not long to live because she is not responding to any treatment. I leave the UK to travel to France tomorrow to spend some time with her. At the moment I don't know whether she has days or weeks - but we know it's not months. So, this is really not a lung specific post - more of a care question. Sorry if I'm off-message but this is as good a place to start as any.
I have spoken to her on the phone but don't really know what to expect. She is in a specialist lung unit in a room on her own. Because her mental faculties are failing as well, her ability to communicate in French is very limited and I'm very concerned for her mental welfare on top of the physical side of what she's going through because she must be very scared.
Unless you work in this area, ordinary life in Western civilisations gives you little training for dealing with terminal/palliative care and I have never been confronted with having to deal with someone who knows the end is near and certainly not a close member of the family.
Is there anybody who's going/gone through this either as a carer or sufferer who could give me some advice as to how to work my way through this?