I feel I am being let down. I was diagnosed with severe emphyseyma fev 33. High pulse rate 125+, constant sleepless nights. any activity like putting out washing or loading or unloading washing machine causes my sats to drop between 57 and 75 regularly.
I have tried all this year to discuss this with my doc just to be told there is nothing they can do.
I am taking seretide 500 and braltus 10mg.
In January I was referred to a lung specialist who took away my seretide and did not replace it. As I felt I was lacking the 12 hour inhaler I convinced my doc to reinstate it.
In march, the lung specialist decided he would order an echocardiogram on that day, but took no notice of my low sats levels and would see me end of june.
Despite prompting the specialists secretary to give me an appointment for the echo, I found that he had not referred me at all. I have phone records of 9 occasions that I have spoke to them about forgetting me.
I finally spoke to the lung specialists supervisor and she said he had the referral letter in his ducket and she personally would chase my request up for the echo.
I finally have an appointment for echo on 20th july.
This should have been requested on 17th march when specialist told me he was asking for it
How have I had to wait 4 months+ for this?
I have never had offer of oxygen therapy referral, and how can I trust my specialist now?