Hi at the beginning of March I was diagnosed with ILD and a form of PF that is exhibits ground glass on CT scan.
It seems to respond to high dose steroids as up to last week I was managing pretty well supported by ambulatory oxygen. Regular 1/2 mile walks - on the flat😀and using my electric bike.
I was on 40mg Prednisone until the 16th March when I dropped to 30mg. I have progressively got worse with breathlessness and coughing culminating in an atrocious day/ night yesterday.
I'm due to drop to 20mg next week.
Any thoughts folks - I'll obviously get on to my GP / specialist Monday