copd IPF(pulmonary fibrosis)

[weeannie60]

hello hope you can bear with me im new to this i have copd emphysma anrecently diagnosed with LFP i have been given oxygen therapy and put o 30mg steriods daily along with my other med what kind of life style can i expect now and is the steriods reduced over time thank you for taking the time to listen to me

[Hidden]

Welcome weeannie to the forum. I am afraid I cannot offer advice but there are plenty of friendly folk who will. Love Annie80x

[weeannie60]

thank you annie for the welcome xxx

[phillips1]

weeannie60 You ask what kind of lifestyle? Well, if you take it steady and keep coming on here you will be ok. There will be days when you feel down but half hour on here should pick you up nicely. You will also learn a lot about our disease. I am Bob and I have COPD moderate/severe but I still enjoy life to the full. xx

[weeannie60]

Thank. You. Bob. That's nice to hear. You get told so many things it confuses me sometime but I look forward to visiting the site and getting to know abot The condition and meeting lovely people who take the time to listen thank you for your time xx

[Lynne1955]

Hi there Weeannie

I too have emphysema but nothing else, so fit as a fiddle otherwise.

Welcome to the site, it's a great source of information and support.

Lynne xx

[weeannie60]

Thank you lynne for your welcome glad to hear your feeling not to bad hope you continue that way take care xxx

[cofdrop-UK]

A very warm welcome to you weeannie.

love cx

[weeannie60]

thank you cofdrop nice to be welcomed as i have gives you a wee boost that your not alone xxx

[Puffthemagicdragon]

Hi weeannie. I have very severe emphysema but no other problems so reasonably fit. I do most things but take more time than normal as I get short of breath. You'll get good information from the members on here as they have the experience of the illnesses..

[weeannie60]

Thanks puff it nice how everyone is so helpful I think that's my biggest problem trying to slow down

[Jo_BLFHelpline British Lung Foundation]

Hi weeannie60

Welcome to the forum - i'm sure you will find lots of excellent advice and support on here.

One of the biggest things i would suggest is trying to get a balance, still doing things and enjoying your life without overdoing things and tiring yourself out too much. Steroids can be reduced over time depending on why they have been prescribed, are they for the COPD or the fibrosis? It may be worth discussing this with your consultant.

We are here at the helpline Monday - Friday 10am -6pm - 03000 030 555 - please call us us if you would like to chat further.

Cheers

Jo

[Jo_BLFHelpline British Lung Foundation]

Hi

Sorry, just to add on to this, pulmonary rehabilitation can be very helpful to people with COPD and IPF.

You can ask your GP to refer you to this - it is a course of exercise that helps to improve your fitness and help to reduce breathlessness, for more information you can click on the link below:

blf.org.uk/Page/Pulmonary-r...

Cheers

Jo

[weeannie60]

Thank you jo I will talk to my gp and consultant thank you for taking the time to answer me xx

[twinks1954]

Hello Weeannie and welcome. I am new too and just joined July after being diagnosed with COPD. So glad that I found this site as everyone is so friendly and helpful. Take care

[weeannie60 in reply to twinks1954]

hello twinks thanks for your welcome hope you enjoy the site and your copd is not to severe tc anna x

[Toci]

Hello. I have very severe emphysema and have had to slow down considerably. However, my advice would be to continue to do whatever you like to do (except smoking!) but just take it a little steadier. You will soon find your level. And, as has been suggested, a pulmonary rehab course (PR) will give lots of tips about diet, exercise, etc.

[weeannie60 in reply to Toci]

hi toci have just had my 6 min walking test and looks like my oxygen will be increased at moment i am 2l on rest and 3 on moving about will find out on the 6th aug when i see my consultant then i can discuss it all with him hope your well at moment tc anna xx