l was diagnosed with bilateral PEs following a keyhole shoulder surgery 6 weeks ago. This changed my life upside down and has left me very worried. l was not given any blood thinners during surgery as the consultant said the surgery was upper limb and low risk. A few days after surgery, l developed stabbing chest pains and shortness of breath, my locum GP sent me to hospital straightaway for examination and l was given clexine injection albeit too late, as they found bilateral PEs. I was prescribed rivaroxaban for life and when l asked if the PEs will dissolve, l was not given a straight answer, but they told me it was important to take the blood thinners to prevent further clots forming and l sent home with no further information or support. I had no knowledge of PEs other than they can kill you and l thought l had been given a death sentence and was going to die any minute. Following days were a nightmare as l started to dig out my life insurances and my pension documents and wrote notes and messages for my children as l thought l was dying. Chest pains continued and was in and out of A&E. l had bad reaction to rivaroxaban and was changed to apixaban which was much better. I still experience chest pains and this is worse at night and unbearable and been to hospital again. Anxiety? Not knowing what to expect causes stress and fear of uncertainty. Question is when do the chest pains stop? Will my body breakdown the PEs or not? If so after how long? Will l be able to go back to work and live my normal life? Will l be able to fly long overhaul journeys of 10hrs? My shoulder recovery has taken a back seat as l deal with this life threatening situation and l am at my wits end as there is no support, advice and l am angry and in a dark place at the moment. I have asked my GP to refer to chest specialist with the hope that l will get some information, GP appears to be limited. Has anybody had something similar and have any idea what l should do or ask my GP to do. Prior to this l was ok, pre op assessment was ok.