I'm looking for reassurance as I'm not getting it from my GP and I tried BLF helpline who offered to send a leaflet but no nurses were working and they didn't know when there would be one working so was not helpful!
I'm 32 years old have has asthma since I was 5 when I was hospitalised with pneumonia, had bad asthma as a child but very well controlled mostly since then. Yet yearly/ bi-yearly chest infections but never think much of it!
I came down with a bad one just before Easter & long story short I am now on my 7th or 8th course of antibiotics as it has still not shifted.
Had an x Ray a couple of weeks ago & it's come back that it looks like a patch of bronchiecstatis. I've been referred to a chest clinic at hospital but it may be months until I'm seen then weeks more until I get a scan.
I came home not very worried as I'd never heard of it & presumed it was a bronchitis type thing, then I looked on patient.co.uk thinking this was most factual site & it tells me average life expectancy is 5-8 years.
I have a 1 year old son. I'm absolutely terrified that I am going to decline now and end up on oxygen or bed bound!
This is made harder by the fact that I can't breathe and am exhausted all the time as this infection is still here & I have no hope that these antibiotics will do anything anymore.
Sorry for the long ramble. I've been in a complete daze since I got this news and feel very low about it. Can anyone tell me what life is really like with this condition? Does it dominate your daily life? Has anyone looked after a young family/ had an active job with it? Is it possible?
Do I need to be so scared? Can I hope to see my son grow up?!
Thank you so much. You look like a really supportive bunch.